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<blockquote data-quote="buddy" data-source="post: 481191" data-attributes="member: 12886"><p>thanks everyone as usual!</p><p></p><p>Liahona, I really hope so too. I fear once they know I have this pitbull on my side that the nice working relationship I have had with most of them will go out the window, I fear communication will not be full and based on another mom's experience, (she was escorted out of the school for being there to support her daughter) I am worried my volunteer days are numbered. If they treat me differently though I suspect pitbull will go after them. She said one of the sp. ed. coordinators she works with well there told her she is just intimidating from the minute she walks in the room. Frankly, I need that right now. I am good at stating my case, but I am far from intimidating. and as much as I hate to admit it, I do think that even Special Education (due to fear of retribution from bosses, and frustration with how hard Q is) in some of their cases, are not being truthful about their efforts. They get pretty defensive with me when I ask simple questions. I have bent over backwards, I mean it, not ONE email without a genuine grateful compliement. Nothing fake, just what I truly am thankful for. </p><p></p><p>I worry that to prove their point they will in little ways, set him up, not redirect as much etc. so he will fall apart and then they can say, see....we can't handle him, isn't he awful But if the data changes drastically after they find out that I have this lady I guess that will speak for itself. </p><p></p><p></p><p>Midwest, It is the MN Disability Law Center. I dont know if they are connected, they are a branch of Legal Aid. They have taken on many cases from this district. They also work with waiver appeals, hospital/Residential Treatment Center (RTC) etc. Anything related to the disability. when I saw on their website it said to call BEFORE 10 suspensions, I thought that they might help. She said yes, if there are five consecutive days on the sixth in MN they have to provide alt. education services. This time we have four...even though they are calling it transition and I allowed it, she said it makes no difference, it is a removal/change in his day without IEP procedures to do so. I have learned from this board to not allow a change in schedule unless there is a permanent plan in place. I understand it is hard to come back from that.</p><p></p><p>The you know what school psychiatric said, well we know Q does better in small settings, in small rooms etc. I said , WAIT a minute... that is what is happening NOW but it is the opposite of what has happened his whole life. His FBA data has always shown he has better behaviors in gen. ed. classes, halls, lunch room. He has had a huge amount of pressure not to do anything wrong in these settings this year and it is just too much. I know they want to write it off to medications, but I didn't start changing medications until they complained that after two years of letting it go, he couldn't run anymore... etc. HE has never hurt anyone running to lunch... it is all teh what ifs. So frustrating.</p><p></p><p>The whistle they were worried about yesterday... it was a three inch rectangle key chain....not a little whistle in his mouth. it made his cheeks puff out. I mean, really they were so worried he would CHOKE??? It would never go thru one of those choke testing things, nto even for an adult. If it went down at all, we could get it easily. Just a waste of energy to fuss about that. </p><p></p><p>Janet---exactly. And for three months people have talked about student education to help the situation. I am so glad the nurse was at the meeting. When the behavior team said to administration, Are you worried that even if we educate the classes Q is in, it is the passing 6th graders taht are the concern? They said yes. I said then why not do a presentation to all of the kids on that end of the building?? They said well taht is a lot of kids. NURSE said, we have done it before!! For kids on feeding tubes, for kids with tourettes.... HUH??? I was sooo happy she spoke up. Behavior team said, yea...we hit all the english classes (required for all so we will get all the students) and nurse even said, we have had the mom come and talk for five minutes. They had tried to shut me out of that.... I told them I have done these disability presentations before. They just dont want me there. Ieven said I am ok with a letter going out to the whole school (parents) saying we have a student (no name) who attends the school who has some unique needs. He has a brain injury and it causes him to have uncontrollable moments of saying inapproprate words and phrases. ... whatever, something to let people know that no one is in danger and he is not intentionally disrespecting anyone. That he has staff with him at all times and while specific information is private, they may call for for general information if they have questions. I think something stating how their student can be encouraging and supportive would be nice to add. I really believe when kids are given a chance to be leaders and role models, many step up to the plate. Our two neighbors do it and one is in the EBD program himself. There are six boys already whose parents have signed permission to work with Q. They are doing a good job so far. SO??? If anyone wants to draft a presentation for me or ideas, I am open to it...my brain is so overwhelmed that I would love the help. Short, direct, reassuring and supportive of Q....that is what I need.</p></blockquote><p></p>
[QUOTE="buddy, post: 481191, member: 12886"] thanks everyone as usual! Liahona, I really hope so too. I fear once they know I have this pitbull on my side that the nice working relationship I have had with most of them will go out the window, I fear communication will not be full and based on another mom's experience, (she was escorted out of the school for being there to support her daughter) I am worried my volunteer days are numbered. If they treat me differently though I suspect pitbull will go after them. She said one of the sp. ed. coordinators she works with well there told her she is just intimidating from the minute she walks in the room. Frankly, I need that right now. I am good at stating my case, but I am far from intimidating. and as much as I hate to admit it, I do think that even Special Education (due to fear of retribution from bosses, and frustration with how hard Q is) in some of their cases, are not being truthful about their efforts. They get pretty defensive with me when I ask simple questions. I have bent over backwards, I mean it, not ONE email without a genuine grateful compliement. Nothing fake, just what I truly am thankful for. I worry that to prove their point they will in little ways, set him up, not redirect as much etc. so he will fall apart and then they can say, see....we can't handle him, isn't he awful But if the data changes drastically after they find out that I have this lady I guess that will speak for itself. Midwest, It is the MN Disability Law Center. I dont know if they are connected, they are a branch of Legal Aid. They have taken on many cases from this district. They also work with waiver appeals, hospital/Residential Treatment Center (RTC) etc. Anything related to the disability. when I saw on their website it said to call BEFORE 10 suspensions, I thought that they might help. She said yes, if there are five consecutive days on the sixth in MN they have to provide alt. education services. This time we have four...even though they are calling it transition and I allowed it, she said it makes no difference, it is a removal/change in his day without IEP procedures to do so. I have learned from this board to not allow a change in schedule unless there is a permanent plan in place. I understand it is hard to come back from that. The you know what school psychiatric said, well we know Q does better in small settings, in small rooms etc. I said , WAIT a minute... that is what is happening NOW but it is the opposite of what has happened his whole life. His FBA data has always shown he has better behaviors in gen. ed. classes, halls, lunch room. He has had a huge amount of pressure not to do anything wrong in these settings this year and it is just too much. I know they want to write it off to medications, but I didn't start changing medications until they complained that after two years of letting it go, he couldn't run anymore... etc. HE has never hurt anyone running to lunch... it is all teh what ifs. So frustrating. The whistle they were worried about yesterday... it was a three inch rectangle key chain....not a little whistle in his mouth. it made his cheeks puff out. I mean, really they were so worried he would CHOKE??? It would never go thru one of those choke testing things, nto even for an adult. If it went down at all, we could get it easily. Just a waste of energy to fuss about that. Janet---exactly. And for three months people have talked about student education to help the situation. I am so glad the nurse was at the meeting. When the behavior team said to administration, Are you worried that even if we educate the classes Q is in, it is the passing 6th graders taht are the concern? They said yes. I said then why not do a presentation to all of the kids on that end of the building?? They said well taht is a lot of kids. NURSE said, we have done it before!! For kids on feeding tubes, for kids with tourettes.... HUH??? I was sooo happy she spoke up. Behavior team said, yea...we hit all the english classes (required for all so we will get all the students) and nurse even said, we have had the mom come and talk for five minutes. They had tried to shut me out of that.... I told them I have done these disability presentations before. They just dont want me there. Ieven said I am ok with a letter going out to the whole school (parents) saying we have a student (no name) who attends the school who has some unique needs. He has a brain injury and it causes him to have uncontrollable moments of saying inapproprate words and phrases. ... whatever, something to let people know that no one is in danger and he is not intentionally disrespecting anyone. That he has staff with him at all times and while specific information is private, they may call for for general information if they have questions. I think something stating how their student can be encouraging and supportive would be nice to add. I really believe when kids are given a chance to be leaders and role models, many step up to the plate. Our two neighbors do it and one is in the EBD program himself. There are six boys already whose parents have signed permission to work with Q. They are doing a good job so far. SO??? If anyone wants to draft a presentation for me or ideas, I am open to it...my brain is so overwhelmed that I would love the help. Short, direct, reassuring and supportive of Q....that is what I need. [/QUOTE]
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