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I finally have a diagnosis!
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<blockquote data-quote="flutterby" data-source="post: 376136" data-attributes="member: 7083"><p>It was funny. My doctor told me I should be able to see results within 30 minutes of taking the medication. So, I waited 30 minutes and thought, "Well, I don't feel any different." <img src="/community/styles/default/xenforo/smilies/Graemlins/rofl.gif" class="smilie" loading="lazy" alt=":rofl:" title="rofl :rofl:" data-shortname=":rofl:" /> Like I was all of a sudden going to be wonder woman or something. I realized I had to actually *do* something and see if I could, you know, do it. And I could.</p><p></p><p>It has decreased my heart rate, but my doctor didn't take me off my beta blocker which is contraindicated. It caused a lot of nausea and GI disturbances. But, the biggest problem is that it makes me want to stretch excessively and extend all of my joints until they are locked - and that feeling progresses to everything touching me bothers me and I become very agitated and irritable. </p><p></p><p>The scary thing is, with Mestinon the symptoms of underdose are the same as overdose. I certainly don't think it was an overdose - I'm on the lowest starting dose from what I can tell: 60mg every 8 hours. </p><p></p><p>I understand it takes a lot of trial and error to get the dosage correct. I also need to talk to my doctor about checking my thymus gland, and about other medications that are used to suppress the immune system, i.e., Imuran and cyclosporine. I don't know when they are used - if they are used in conjunction with Mestinon or as an alternative. Since Mestinon just replaces the acetylcholine receptors it doesn't appear that it does anything with the immune system. So, then I have a hard time understanding how it would help with my other symptoms, i.e., fevers, generalized fatigue, etc. There are also other treatments like plasmapharesis and another one that are used at certain times.</p></blockquote><p></p>
[QUOTE="flutterby, post: 376136, member: 7083"] It was funny. My doctor told me I should be able to see results within 30 minutes of taking the medication. So, I waited 30 minutes and thought, "Well, I don't feel any different." :rofl: Like I was all of a sudden going to be wonder woman or something. I realized I had to actually *do* something and see if I could, you know, do it. And I could. It has decreased my heart rate, but my doctor didn't take me off my beta blocker which is contraindicated. It caused a lot of nausea and GI disturbances. But, the biggest problem is that it makes me want to stretch excessively and extend all of my joints until they are locked - and that feeling progresses to everything touching me bothers me and I become very agitated and irritable. The scary thing is, with Mestinon the symptoms of underdose are the same as overdose. I certainly don't think it was an overdose - I'm on the lowest starting dose from what I can tell: 60mg every 8 hours. I understand it takes a lot of trial and error to get the dosage correct. I also need to talk to my doctor about checking my thymus gland, and about other medications that are used to suppress the immune system, i.e., Imuran and cyclosporine. I don't know when they are used - if they are used in conjunction with Mestinon or as an alternative. Since Mestinon just replaces the acetylcholine receptors it doesn't appear that it does anything with the immune system. So, then I have a hard time understanding how it would help with my other symptoms, i.e., fevers, generalized fatigue, etc. There are also other treatments like plasmapharesis and another one that are used at certain times. [/QUOTE]
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