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Well, he had a few cyanotic episodes at birth...spent a few days in NICU because he stopped breathing and turned purple a few times. Then, he had a shot reaction with seizures and ER visit and 106 fever. Then when he was around 7 or 8 he would hold his breath and Valsalva maneuver himself until he saw stars and passed out.  Those are a few things that have always concerned me.


Also, because my husband has seen one of his eyes act like there is some nystagmus going on. Only one, though, and I have never seen it. And my hubby works with CP kids and he is like a CP whisperer --he can find it before docs do. He has said all along that something is weird with difficult child's gait and coordination, but it is so mild he has been under the radar and we just chalked it up to Asperger's, like we did with so many other things.


Also, because difficult child's neuropsychologist evaluation 1 year ago came out so weird that people thought the testing was bad, and this latest therapist agrees that we should have neurologist testing because his impulse control is almost nothing, and his flat affect is really pronounced, and he has a history of oxygen deprivation.


Just so you know, my health is good -- and sorry about the reference here -- but I put the oxygen mask on myself first these days....I go to the gym five days a week and am following a challenging program with specific goals in mind.


I will make the suggested calls. I have a relative in the county PD, who begs me to keep him out of the system and deal with things privately, because she knows how dangerous it is within the system. She knows the child and suspects time "inside" would damage him terribly. Strangely, there is an innocence about him, and a real naivety. This is what is sad to me.

Thank you for your input!


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