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General Parenting
ideas desperatly needed!
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<blockquote data-quote="piglettsmummy" data-source="post: 535310" data-attributes="member: 14767"><p>hey guys, my little girl is 21months old. when she was born we n=knew </p><p>something waswrong with her breathing...it was rather irregualr and looked like </p><p>she paused every so often. doctors said she was fine but when since the age if 3 </p><p>months she has stopped breathing during thr night, at 10months doctors did a </p><p>sleep study and found out she has between 400-600central apneas a night lasting </p><p>about 10-20seconds. MRIscans came back clearn and a CCHS test was negative, she </p><p>was given caffeiene medicine failed to stimulate her central nervous system </p><p>(this is because they assume a chemoreceptor issue), oxygen lengthend her apneas </p><p>and our current treatment a bipap ventilator hasnt worked they way they hoped it </p><p>would and she has become dpenedent on it. they dont no what is wrong with her </p><p>she is perfectly healthy in every way she suffers regualr secondary lactoose </p><p>intolerant episodes but thats it! central sleep apnea has also been ruled out </p><p>they believe it could be immaturity of breathing control! i am not convinced. if </p><p>her new vent doesnt work they are halting all treatment and allowing her </p><p>breathing to continue how it is without any support! please please if anyone can </p><p>give ideas of treatment or conditions i would be eternally grateful!!!</p><p></p><p>thankyouu</p><p><img src="/community/styles/default/xenforo/smilies/emoticons/sigh.gif" class="smilie" loading="lazy" alt=":sigh:" title="sigh :sigh:" data-shortname=":sigh:" /></p></blockquote><p></p>
[QUOTE="piglettsmummy, post: 535310, member: 14767"] hey guys, my little girl is 21months old. when she was born we n=knew something waswrong with her breathing...it was rather irregualr and looked like she paused every so often. doctors said she was fine but when since the age if 3 months she has stopped breathing during thr night, at 10months doctors did a sleep study and found out she has between 400-600central apneas a night lasting about 10-20seconds. MRIscans came back clearn and a CCHS test was negative, she was given caffeiene medicine failed to stimulate her central nervous system (this is because they assume a chemoreceptor issue), oxygen lengthend her apneas and our current treatment a bipap ventilator hasnt worked they way they hoped it would and she has become dpenedent on it. they dont no what is wrong with her she is perfectly healthy in every way she suffers regualr secondary lactoose intolerant episodes but thats it! central sleep apnea has also been ruled out they believe it could be immaturity of breathing control! i am not convinced. if her new vent doesnt work they are halting all treatment and allowing her breathing to continue how it is without any support! please please if anyone can give ideas of treatment or conditions i would be eternally grateful!!! thankyouu :sigh: [/QUOTE]
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