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<blockquote data-quote="buddy" data-source="post: 535390" data-attributes="member: 12886"><p>I agree (will apologize, my spacebar is not working....so my post may seem weird)</p><p></p><p>We dont diagnose here, but he doesn't sound Pervasive Developmental Disorder (PDD)-not otherwise specified just mho, his communication style, sensory issues, behaviors, eye contact, not responding to traditional parenting methods....sound pretty Autism Spectrum Disorders (ASD) to me. I bet if you get a g ood evaluation, where they LISTEN to you, you will get more help than Pervasive Developmental Disorder (PDD)-not otherwise specified can give you (that diagnosis is going out anyway, the new diagnostic manual is changing from the whole Pervasive Developmental Disorder (PDD) thing with Autism, Aspergers, etc.... to just straight Autism Spectrum Disorders (ASD)....looking at it as a spectrum from mild to severe). In your case I hope that will be a good thing. He sounds very bright as many kids with Autism Spectrum Disorders (ASD) are, and yet he has communication issues and sensory issues that are really impacting his ability to get along socially. My son had a brain mass and also on the spectrum. WHere it comes from is not as important as finding good therapy to work the way he thinks and processes information and it sounds like you are fighting the good fight looking for help. When was the school evaluation? Some districts are great working with autism and others are lousy. I am so sorry yours missed it. Finding a diagnosis (even if it is not autism) before school sounds like it will b e a huge benefit to you since they seem not to dig deep enough. You can present his information to them. </p><p></p><p>Make sure to bring notes about those kinds o f conversations, lists of sensory challenges, any social issues (with you, other family, peers, strangers, etc....) any behaviors to theeval. It i s so sad when people say kids are just behaving badly when your gut tells you there is something going on th at they really needh elp with. It implies that they are doing it to just manipulate (in the neg. sense of the world...everyone does what they do to manipulate their environment, but some kids just dont know how to do that in a positive way to get their needs met). He is probably just as frustrated as those around him who dont understand. </p><p></p><p>When I get into those circular discussions with my son I started (very early on) saying "all done talking". In an even happy tone, no upset. When he was small I signed finish while saying that. (look up American sign language online where they have little movies to show you how) and these kinds of visual cues can help a child who gets stuck in their words stop. My son is 15 now and we still have to use some visual communication to help guide him. </p><p></p><p>I also carry soft earplugs with me where ever I go. Other moms have kleenex, lol....I carry earplugs and things to mouth. The Occupational Therapist (OT) can help you find alternatives to things for him to chew on that are not too socially inappropriate if he needs them out of thehouse or school/daycare. Some people buy noise cancelling earphones and hook them to cheap mp3 players OR you can just get noise protection ear phones if he doesn't like things IN his ears. </p><p></p><p>Many of us also find that for our kids who get upset easily, if we have a visual schedule, showing simple graphics or pictures by the words....to help organize the day (get dressed, eat breakfast, brush teeth, get in car, school, home, etc....) then you show the picture of what is next maybe a half hour or 15 minutes before the next activity. It can just help with overall calming so other things can be worked on. Each activity on a schedule may need their own task board or list....telling the steps to do things. Again, not because they can't. It just helps SOME kids be more organized and you dont have to do as much talking to direct them...which can be frustrating to some kids.</p><p></p><p>Just ideas, they may not suit your situation at all. Lots of us here have kids who are kind of mixed bags, it is nice to h ave a diagnosis ( sad yes, but really nice to get the help that comes with a broader diagnosis). If you have specific situations I bet there will be more than one parent here with kids who have different kinds of disorders or issues and we can throw out ideas for you so you can see what might work for your son. I love that here, because books can be good but how to do i t in real life (and have it be reasonable, something real humans can do, lol) is so helpful....I love the input I get on this board! </p><p></p><p>Anyway, welcome. No matter what they decide the diagnosis is, if anything, he is your precious son and we all understand how special and challenging that is. We will be here to get to know you and hope you can share and encourage us too! You have done this already for four years, I am sure you have some pretty good tricks up your sleeve already, lol.</p></blockquote><p></p>
[QUOTE="buddy, post: 535390, member: 12886"] I agree (will apologize, my spacebar is not working....so my post may seem weird) We dont diagnose here, but he doesn't sound Pervasive Developmental Disorder (PDD)-not otherwise specified just mho, his communication style, sensory issues, behaviors, eye contact, not responding to traditional parenting methods....sound pretty Autism Spectrum Disorders (ASD) to me. I bet if you get a g ood evaluation, where they LISTEN to you, you will get more help than Pervasive Developmental Disorder (PDD)-not otherwise specified can give you (that diagnosis is going out anyway, the new diagnostic manual is changing from the whole Pervasive Developmental Disorder (PDD) thing with Autism, Aspergers, etc.... to just straight Autism Spectrum Disorders (ASD)....looking at it as a spectrum from mild to severe). In your case I hope that will be a good thing. He sounds very bright as many kids with Autism Spectrum Disorders (ASD) are, and yet he has communication issues and sensory issues that are really impacting his ability to get along socially. My son had a brain mass and also on the spectrum. WHere it comes from is not as important as finding good therapy to work the way he thinks and processes information and it sounds like you are fighting the good fight looking for help. When was the school evaluation? Some districts are great working with autism and others are lousy. I am so sorry yours missed it. Finding a diagnosis (even if it is not autism) before school sounds like it will b e a huge benefit to you since they seem not to dig deep enough. You can present his information to them. Make sure to bring notes about those kinds o f conversations, lists of sensory challenges, any social issues (with you, other family, peers, strangers, etc....) any behaviors to theeval. It i s so sad when people say kids are just behaving badly when your gut tells you there is something going on th at they really needh elp with. It implies that they are doing it to just manipulate (in the neg. sense of the world...everyone does what they do to manipulate their environment, but some kids just dont know how to do that in a positive way to get their needs met). He is probably just as frustrated as those around him who dont understand. When I get into those circular discussions with my son I started (very early on) saying "all done talking". In an even happy tone, no upset. When he was small I signed finish while saying that. (look up American sign language online where they have little movies to show you how) and these kinds of visual cues can help a child who gets stuck in their words stop. My son is 15 now and we still have to use some visual communication to help guide him. I also carry soft earplugs with me where ever I go. Other moms have kleenex, lol....I carry earplugs and things to mouth. The Occupational Therapist (OT) can help you find alternatives to things for him to chew on that are not too socially inappropriate if he needs them out of thehouse or school/daycare. Some people buy noise cancelling earphones and hook them to cheap mp3 players OR you can just get noise protection ear phones if he doesn't like things IN his ears. Many of us also find that for our kids who get upset easily, if we have a visual schedule, showing simple graphics or pictures by the words....to help organize the day (get dressed, eat breakfast, brush teeth, get in car, school, home, etc....) then you show the picture of what is next maybe a half hour or 15 minutes before the next activity. It can just help with overall calming so other things can be worked on. Each activity on a schedule may need their own task board or list....telling the steps to do things. Again, not because they can't. It just helps SOME kids be more organized and you dont have to do as much talking to direct them...which can be frustrating to some kids. Just ideas, they may not suit your situation at all. Lots of us here have kids who are kind of mixed bags, it is nice to h ave a diagnosis ( sad yes, but really nice to get the help that comes with a broader diagnosis). If you have specific situations I bet there will be more than one parent here with kids who have different kinds of disorders or issues and we can throw out ideas for you so you can see what might work for your son. I love that here, because books can be good but how to do i t in real life (and have it be reasonable, something real humans can do, lol) is so helpful....I love the input I get on this board! Anyway, welcome. No matter what they decide the diagnosis is, if anything, he is your precious son and we all understand how special and challenging that is. We will be here to get to know you and hope you can share and encourage us too! You have done this already for four years, I am sure you have some pretty good tricks up your sleeve already, lol. [/QUOTE]
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