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I've been asked to draw my line in the sand....
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<blockquote data-quote="DDD" data-source="post: 346834" data-attributes="member: 35"><p>I surely don't know how you can "draw the line" in advance when you don't have viable care options available. Doesn't make sense to me (although I have never walked in your shoes and can only imagine how difficult it is).</p><p> </p><p>Is it possible to identify activities that have become more difficult this year and alternate actions you would consider for the sake of your family? For example, could you say</p><p>that the physical activity of maintaining Williams schedule</p><p>needs to be addressed? Could you participate in important meetings via conference call instad of in person? Could the home visits be reduced so your schedule is not so frantic?</p><p>Could you say that although you are comfortable with KT staying at home with you until she "hits her line" but that you need X support to reduce the stress?</p><p> </p><p>I can't imagine that they expect you to say "when my BiPolar (BP) to a certain number" or "when the pain pills stop working" etc. to identify a cut off point. Perhaps you could ask for a HHW or CNA to supplement your homelife so you can rest, not have</p><p>to worry about household chores or kitchen duty they would respond. Perhaps they could provide transportation to the</p><p>appointments for KT and you could participate via phone?</p><p> </p><p>I'm always rooting for you, Linda. It just seems like asking for a reduction in responsibilities might tide you guys over until the time comes when a viable plan for KT is necessary or available. As always, prayers go your way. DDD</p></blockquote><p></p>
[QUOTE="DDD, post: 346834, member: 35"] I surely don't know how you can "draw the line" in advance when you don't have viable care options available. Doesn't make sense to me (although I have never walked in your shoes and can only imagine how difficult it is). Is it possible to identify activities that have become more difficult this year and alternate actions you would consider for the sake of your family? For example, could you say that the physical activity of maintaining Williams schedule needs to be addressed? Could you participate in important meetings via conference call instad of in person? Could the home visits be reduced so your schedule is not so frantic? Could you say that although you are comfortable with KT staying at home with you until she "hits her line" but that you need X support to reduce the stress? I can't imagine that they expect you to say "when my BiPolar (BP) to a certain number" or "when the pain pills stop working" etc. to identify a cut off point. Perhaps you could ask for a HHW or CNA to supplement your homelife so you can rest, not have to worry about household chores or kitchen duty they would respond. Perhaps they could provide transportation to the appointments for KT and you could participate via phone? I'm always rooting for you, Linda. It just seems like asking for a reduction in responsibilities might tide you guys over until the time comes when a viable plan for KT is necessary or available. As always, prayers go your way. DDD [/QUOTE]
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I've been asked to draw my line in the sand....
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