buddy
New Member
psychiatrist:
I didn't bring Q, we just talked about the patch issue. I'm liking this doctor more now. She gave me extra clonidine tabs to use on the days when it seems the patches are ramping down (no more talk of oh no, he has too much...they see he is stable and so no worries)
THEN she says, ok, from now on, we are going to pull one off, every 4 then 3 days (so when one hits 7 it comes off but then put a fresh one on) Does that make sense? SO, we may then have less of an issue because only one of the patches will be on the downward trend while the other is at the max. If that lowers things overall it might not work but it is worth a try.
In the mean time I have the extra tabs anyway so....
The other issue that just started is that the new zyprexa JUST came out in generic. So so far only the 10 mg dose has been refilled and he started that on Sunday night. Tuesday there was an issue at school, then an issue with the Integrated Listening Systems (ILS) person at night (OMG AND security people in a library, uggg) and then Wed. with me again... plus his general irritability factor is off the chain again, if I bobbed my head to music he screamed at me, if I tapped my finger on the steering wheel he hit my shoulder, etc. Just back to before the zyprexa increase. Then I remembered we switched to generic. Could be a bad week, I know, but the timing is weird.
BUT since they just switched to generic the sales rep gave all her samples to the clinic. They gave them to me to switch back to zyprexa name brand. She said since it uses two enzyme systems to process the medication and one is the one Q does not have (it is secondary to the other one) that may be one issue and the generic has to be within a certain range of the name brand for bio-availablity but not exact so it could be that the two things combined have put Q who is so sensitive at a place where generic wont work. OK, she really is ok I guess, and she said she is going to just start a prior auth now because she really thinks it is no coincidence that this changed so dramatically after two amazing weeks.
INTAKE FOR NEW SOCIAL GROUP
I kept waiting for them to say, well this is alittle more than I really thought you meant on the phone...but NO! She said that she wishes the school would have told her about them or that someone would have because they take kids JUST like Q and bring him to them instead of school, they work 2 on 1 and intensively figure out what things are going on and then eventually help place them. They often place where he IS so that is a good sign. But she said they wont even hire people who work in EBD only programs. No way. No consequence/reward programs etc. She said what I always say... EBD and Autism Spectrum Disorders (ASD) do NOT mix. (if someone knows BOTH that is fine, but they really work from the Autism Spectrum Disorders (ASD) perspective) They have a policy that if a child is too disruptive in the class portion of a session (before the therapeutic rec part) they can't go out, but she said that almost never happens because they all have issues in a class and with Q being given a 1:1 that would solve the issue anyway, they would have their own session and then join in... So, it costs about 450 more for a 1:1 and then there are activity fees but they will write it up as fees for classes (the waiver will NOT pay for tickets to things etc.) then it can be collapsed in and they will cover it.
She said over and over Q is the exact kid they are made for. THey want him to be able to do their drop in classes and overnights too when they know him. They are activities but they still staff it the same as the classes. Still work on goals but work to generalize it. So, these guys get overnights and outings with peers but have their staff and cues right there....seems to go way beyond Integrated Listening Systems (ILS) and Q will LOVE being with kids again.
I let it all out, every single awful behavior and word he says...she didn't bat an eye.
I pray it goes well (even said they have had two other brain injured kids in the past couple of years).
HOPING, PRAYING...... Now, I'm in the middle of no where (yeah this too is on the other side of the world from me but not super far from school) so I am sitting in a public library waiting till I need to pick Q up for his therapy session.
I have spent 40 dollars in gas in a day and a half. OMG. Glad I just turned in a gas reimbursement form. (the doctor appointment was way EAST of the cities and this is way way way WEST of the cities, LOL)
I didn't bring Q, we just talked about the patch issue. I'm liking this doctor more now. She gave me extra clonidine tabs to use on the days when it seems the patches are ramping down (no more talk of oh no, he has too much...they see he is stable and so no worries)
THEN she says, ok, from now on, we are going to pull one off, every 4 then 3 days (so when one hits 7 it comes off but then put a fresh one on) Does that make sense? SO, we may then have less of an issue because only one of the patches will be on the downward trend while the other is at the max. If that lowers things overall it might not work but it is worth a try.
In the mean time I have the extra tabs anyway so....
The other issue that just started is that the new zyprexa JUST came out in generic. So so far only the 10 mg dose has been refilled and he started that on Sunday night. Tuesday there was an issue at school, then an issue with the Integrated Listening Systems (ILS) person at night (OMG AND security people in a library, uggg) and then Wed. with me again... plus his general irritability factor is off the chain again, if I bobbed my head to music he screamed at me, if I tapped my finger on the steering wheel he hit my shoulder, etc. Just back to before the zyprexa increase. Then I remembered we switched to generic. Could be a bad week, I know, but the timing is weird.
BUT since they just switched to generic the sales rep gave all her samples to the clinic. They gave them to me to switch back to zyprexa name brand. She said since it uses two enzyme systems to process the medication and one is the one Q does not have (it is secondary to the other one) that may be one issue and the generic has to be within a certain range of the name brand for bio-availablity but not exact so it could be that the two things combined have put Q who is so sensitive at a place where generic wont work. OK, she really is ok I guess, and she said she is going to just start a prior auth now because she really thinks it is no coincidence that this changed so dramatically after two amazing weeks.
INTAKE FOR NEW SOCIAL GROUP
I kept waiting for them to say, well this is alittle more than I really thought you meant on the phone...but NO! She said that she wishes the school would have told her about them or that someone would have because they take kids JUST like Q and bring him to them instead of school, they work 2 on 1 and intensively figure out what things are going on and then eventually help place them. They often place where he IS so that is a good sign. But she said they wont even hire people who work in EBD only programs. No way. No consequence/reward programs etc. She said what I always say... EBD and Autism Spectrum Disorders (ASD) do NOT mix. (if someone knows BOTH that is fine, but they really work from the Autism Spectrum Disorders (ASD) perspective) They have a policy that if a child is too disruptive in the class portion of a session (before the therapeutic rec part) they can't go out, but she said that almost never happens because they all have issues in a class and with Q being given a 1:1 that would solve the issue anyway, they would have their own session and then join in... So, it costs about 450 more for a 1:1 and then there are activity fees but they will write it up as fees for classes (the waiver will NOT pay for tickets to things etc.) then it can be collapsed in and they will cover it.
She said over and over Q is the exact kid they are made for. THey want him to be able to do their drop in classes and overnights too when they know him. They are activities but they still staff it the same as the classes. Still work on goals but work to generalize it. So, these guys get overnights and outings with peers but have their staff and cues right there....seems to go way beyond Integrated Listening Systems (ILS) and Q will LOVE being with kids again.
I let it all out, every single awful behavior and word he says...she didn't bat an eye.
I pray it goes well (even said they have had two other brain injured kids in the past couple of years).
HOPING, PRAYING...... Now, I'm in the middle of no where (yeah this too is on the other side of the world from me but not super far from school) so I am sitting in a public library waiting till I need to pick Q up for his therapy session.
I have spent 40 dollars in gas in a day and a half. OMG. Glad I just turned in a gas reimbursement form. (the doctor appointment was way EAST of the cities and this is way way way WEST of the cities, LOL)
