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My son is Explosive! PTSD,CD,ODD,RAT
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<blockquote data-quote="Marguerite" data-source="post: 303063" data-attributes="member: 1991"><p>You've had experience with Prader-Willi, which is good. But a couple of thoughts from my own experience - they can't regurgitate so if they eat toxic rubbish they often have to hve their stomach pumped. Their hypothalamus doesn't repsond to increase in blood sugar level or stretch receptors in the stomach, so they really do feel ravenous all the time, even if given extra food. And thwy only need about two thirds the usual calories for someone their age without PWS.</p><p></p><p>So think back to his infancy - did he have the usual spit-ups a baby has on over-feeding? Or as he grew, how was he feeding then? How is his weight now?</p><p></p><p>Friends of ours with a PWS boy have managed to keep their son from being too overweight, but the extremes ofcontrol needed have been horrendous. At 11 they finally have had to put him into care and he was put on a higher dose of something that sedates him, to try to damp down a lot of the problem behaviours. And yes, he would scream at people for not feeding him enough - in public it could be very embarrassing as well as very difficult to explain - people would see the parents seriously limiting what their son was allowed to have on his plate (because of the reduced calories issue) and give them a hard time, which only undermined them in front of the boy and made things worse.</p><p></p><p>I really hope your son doesn't have PWS. However, I do hope you get some clues as to what is wrong. If her's been referred to a genetic counsellor, then hopefully he will be checked out for other possibilities such as Fragile X.</p><p></p><p>I'm presuming the PTSD is from unpleasant experiences (to say the least) from his mother's inability to handle him effectively? While I'm not dicounting the damage that can be done, don't also underestimate how resilient kids can be - it is very easy to blame current behaviour problems on such past events, which can mask other, deeper problems which would have been there anyway.</p><p></p><p>What I'm saying - look deeper, look harder and don't be too easily satisfied with the fast, easy answers. They may be relevant of course, but may not be the only issue, by far.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 303063, member: 1991"] You've had experience with Prader-Willi, which is good. But a couple of thoughts from my own experience - they can't regurgitate so if they eat toxic rubbish they often have to hve their stomach pumped. Their hypothalamus doesn't repsond to increase in blood sugar level or stretch receptors in the stomach, so they really do feel ravenous all the time, even if given extra food. And thwy only need about two thirds the usual calories for someone their age without PWS. So think back to his infancy - did he have the usual spit-ups a baby has on over-feeding? Or as he grew, how was he feeding then? How is his weight now? Friends of ours with a PWS boy have managed to keep their son from being too overweight, but the extremes ofcontrol needed have been horrendous. At 11 they finally have had to put him into care and he was put on a higher dose of something that sedates him, to try to damp down a lot of the problem behaviours. And yes, he would scream at people for not feeding him enough - in public it could be very embarrassing as well as very difficult to explain - people would see the parents seriously limiting what their son was allowed to have on his plate (because of the reduced calories issue) and give them a hard time, which only undermined them in front of the boy and made things worse. I really hope your son doesn't have PWS. However, I do hope you get some clues as to what is wrong. If her's been referred to a genetic counsellor, then hopefully he will be checked out for other possibilities such as Fragile X. I'm presuming the PTSD is from unpleasant experiences (to say the least) from his mother's inability to handle him effectively? While I'm not dicounting the damage that can be done, don't also underestimate how resilient kids can be - it is very easy to blame current behaviour problems on such past events, which can mask other, deeper problems which would have been there anyway. What I'm saying - look deeper, look harder and don't be too easily satisfied with the fast, easy answers. They may be relevant of course, but may not be the only issue, by far. Marg [/QUOTE]
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