Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
New Member - What do I do next?
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="Marguerite" data-source="post: 385499" data-attributes="member: 1991"><p>I agree with MidwestMom - one of the hallmarks of Asperger's, vs other autism disorders, is NO language delay. I have one autistic kid (high-functioning) who had significant language delay (he now has a uni-level vocabulary) and one more who clearly has Asperger's and had no language difficulties at all. Plus one more who we were told had Asperger's traits and there is still some discussion over whether she should actually get an Aspie diagnosis - and her vocabulary, from very young, was very advanced. All are exceptionally bright, but it is my Aspie son who seems the least bright and has chosen a trade rather an academic pursuits. IQs assessed in the mid 140s and we were told they were probably under-estimates. They have an older sister, also mid-140s IQ, who does not have any Pervasive Developmental Disorder (PDD) traits.</p><p></p><p>There is a difference between language delay and speech delay. A child who is non-verbal for other reasons can still have language. And a child who can speak, but is only echolalic, still has language delay even though they can clearly demonstrate their ability to vocalise.</p><p></p><p>Do you have a speech pathologist on board? We have found that a really good speech pathologist can be a huge asset to getting an accurate diagnosis of Pervasive Developmental Disorder (PDD).</p><p></p><p>The other point I want to make - according to Sydney experts at Royal Prince Alfred Hospital, about 30% of children with Pervasive Developmental Disorder (PDD) can also have food sensitivities which aggravate their symptoms or cause other problems. We actually went through their program for a while (it was part of a research study) but had to drop out when it was clear that difficult child 3's apparent digestive problems were actually extreme anxiety and not food-related. We had already ruled out milk and gluten as possible problems, so the Elimination Diet we put difficult child 3 on did not exclude milk or wheat. But it was still tough. What really impressed me about the team - they had booklets for everything which we took when shopping. Certain brands were to be avoided, others were sought after, according to constantly updated ingredients lists. We also had a list of ingredients to avoid and got very accustomed to reading the fine print on labels! difficult child 3 especially became very insistent at reading labels and was very compliant, but even so, there were often times when we made mistakes. Staying on an Elimination Diet, even when you try to, is not easy.</p><p></p><p>We found that people's ideas of food sensitivities are much more limited than the reality. difficult child 3 lost weight on the Elimination Diet, it is not healthy nor is it sustainable. But as a diagnostic tool, it is something we had to go through. First we had to wait for his constant exposure to all these naturally-occurring chemicals (gluten, salicylate, lactose, amines, glutamates) to wash out of his system. As I already said, we had previously tested for lactose and gluten sensitivities and found no change. But salicylates - you get those in anything with flavour. Herbs, honey, most fruit & vegetables. After taking out everything, we were left with white rice, white sugar, peeled potatoes, peeled pears (only lately, they've limited pears to one or two varieties), lamb and chicken without the skin. Nothing else at all. OK, a little salt. I've also known people who, while on this diet, developed a sensitivity to chicken.</p><p></p><p>It's a nasty diet to have to live on and nasty to have to administer. But you have to be on this for several weeks up to several months, then you introduce ONE group only, and observe any changes. If no change, that group can stay in. Then you introduce the next group of chemicals, and so on. If you get a reaction, you drop the offending group for another few weeks and then it's back to challenging the food groups. Laborious, but if done well it provides valuable information. And a I said, in 30% of cases, this team saw improvements. That means in 70%, there was no change.</p><p></p><p>I'm sure if you Google the hospital in Australia and look for the pediatric dieticiains, you will find information. You might be able to find a US connection, someone who has lists of US products which have been analysed.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 385499, member: 1991"] I agree with MidwestMom - one of the hallmarks of Asperger's, vs other autism disorders, is NO language delay. I have one autistic kid (high-functioning) who had significant language delay (he now has a uni-level vocabulary) and one more who clearly has Asperger's and had no language difficulties at all. Plus one more who we were told had Asperger's traits and there is still some discussion over whether she should actually get an Aspie diagnosis - and her vocabulary, from very young, was very advanced. All are exceptionally bright, but it is my Aspie son who seems the least bright and has chosen a trade rather an academic pursuits. IQs assessed in the mid 140s and we were told they were probably under-estimates. They have an older sister, also mid-140s IQ, who does not have any Pervasive Developmental Disorder (PDD) traits. There is a difference between language delay and speech delay. A child who is non-verbal for other reasons can still have language. And a child who can speak, but is only echolalic, still has language delay even though they can clearly demonstrate their ability to vocalise. Do you have a speech pathologist on board? We have found that a really good speech pathologist can be a huge asset to getting an accurate diagnosis of Pervasive Developmental Disorder (PDD). The other point I want to make - according to Sydney experts at Royal Prince Alfred Hospital, about 30% of children with Pervasive Developmental Disorder (PDD) can also have food sensitivities which aggravate their symptoms or cause other problems. We actually went through their program for a while (it was part of a research study) but had to drop out when it was clear that difficult child 3's apparent digestive problems were actually extreme anxiety and not food-related. We had already ruled out milk and gluten as possible problems, so the Elimination Diet we put difficult child 3 on did not exclude milk or wheat. But it was still tough. What really impressed me about the team - they had booklets for everything which we took when shopping. Certain brands were to be avoided, others were sought after, according to constantly updated ingredients lists. We also had a list of ingredients to avoid and got very accustomed to reading the fine print on labels! difficult child 3 especially became very insistent at reading labels and was very compliant, but even so, there were often times when we made mistakes. Staying on an Elimination Diet, even when you try to, is not easy. We found that people's ideas of food sensitivities are much more limited than the reality. difficult child 3 lost weight on the Elimination Diet, it is not healthy nor is it sustainable. But as a diagnostic tool, it is something we had to go through. First we had to wait for his constant exposure to all these naturally-occurring chemicals (gluten, salicylate, lactose, amines, glutamates) to wash out of his system. As I already said, we had previously tested for lactose and gluten sensitivities and found no change. But salicylates - you get those in anything with flavour. Herbs, honey, most fruit & vegetables. After taking out everything, we were left with white rice, white sugar, peeled potatoes, peeled pears (only lately, they've limited pears to one or two varieties), lamb and chicken without the skin. Nothing else at all. OK, a little salt. I've also known people who, while on this diet, developed a sensitivity to chicken. It's a nasty diet to have to live on and nasty to have to administer. But you have to be on this for several weeks up to several months, then you introduce ONE group only, and observe any changes. If no change, that group can stay in. Then you introduce the next group of chemicals, and so on. If you get a reaction, you drop the offending group for another few weeks and then it's back to challenging the food groups. Laborious, but if done well it provides valuable information. And a I said, in 30% of cases, this team saw improvements. That means in 70%, there was no change. I'm sure if you Google the hospital in Australia and look for the pediatric dieticiains, you will find information. You might be able to find a US connection, someone who has lists of US products which have been analysed. Marg [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
New Member - What do I do next?
Top