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<blockquote data-quote="slsh" data-source="post: 265101" data-attributes="member: 8"><p>Hi Dad and welcome.</p><p> </p><p>My oldest is nonverbal. If I could have a redo, the one thing I'd change is how assertive I was in getting some form of communication system going when he was younger. We've been putzing around with various "systems" since he was in the birth-3 center - picture boards, key phrases taped to his wheelchair tray, assistive tech devices, etc. We're still without a functional method of communication aside from yes/no questions and word approximations when we're giving him a choice- he's unable to initiate communication other than hollering "hey" and then we have to figure out what he wants/needs - imperfect at best.</p><p> </p><p>What I find most frustrating is that these kids are *not* unique, but I feel like we're reinventing the wheel, over and over and over again. Just our experience, but I have yet to run into an Speech Language Pathologist (SLP)/Occupational Therapist (OT) in a school setting who has a clue about how to work towards meaningful communication access. </p><p> </p><p>Have the boys been evaluated for assistive tech? If not, I'd recommend an evaluation preferrably at a rehab facility rather than in the SD - independent evaluation here is definitely a reasonable request in my experience. Is sign language an option? What methods have been tried? Do you think they have the desire to communicate and the cognitive ability? Do they communicate with each other?</p><p> </p><p>Communication issues are a real bear. I wish I had the magic answer but we're still searching for it here, too. </p><p> </p><p>Welcome and glad you found us!!</p></blockquote><p></p>
[QUOTE="slsh, post: 265101, member: 8"] Hi Dad and welcome. My oldest is nonverbal. If I could have a redo, the one thing I'd change is how assertive I was in getting some form of communication system going when he was younger. We've been putzing around with various "systems" since he was in the birth-3 center - picture boards, key phrases taped to his wheelchair tray, assistive tech devices, etc. We're still without a functional method of communication aside from yes/no questions and word approximations when we're giving him a choice- he's unable to initiate communication other than hollering "hey" and then we have to figure out what he wants/needs - imperfect at best. What I find most frustrating is that these kids are *not* unique, but I feel like we're reinventing the wheel, over and over and over again. Just our experience, but I have yet to run into an Speech Language Pathologist (SLP)/Occupational Therapist (OT) in a school setting who has a clue about how to work towards meaningful communication access. Have the boys been evaluated for assistive tech? If not, I'd recommend an evaluation preferrably at a rehab facility rather than in the SD - independent evaluation here is definitely a reasonable request in my experience. Is sign language an option? What methods have been tried? Do you think they have the desire to communicate and the cognitive ability? Do they communicate with each other? Communication issues are a real bear. I wish I had the magic answer but we're still searching for it here, too. Welcome and glad you found us!! [/QUOTE]
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