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new, need to learn about guardianship, coping skills
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<blockquote data-quote="buddy" data-source="post: 577987" data-attributes="member: 12886"><p>Hi! My son will also need guardianship and I can see him not wanting it. I asked our disability advocate and she said that his medical history and school records will be enough to make our case, not to worry. </p><p></p><p>As far as SSI, My son was adopted so he has an adoption subsidy (like child support) through his state of adoption and I was told I had to pick that or SSI. He is declared permanently disabled so he could receive an MA waiver (special needs children who are adopted through the states are eligible for MA until they are adults, 21 if disabled). I have no problem with his receiving any support that will help him reach his potential. If I was in a position to afford the therapies he needed without MA or his waiver I'd gladly have done it but it wasn't feasible for him. When he is 18 I have to decide if I will switch him to SSI or keep the adoption assistance (if he is living with me still he can have the adoption assistance until 21 too, he will only be in grade 11 when he is 18). I needed to stop working my out of home job to care for him due to his behaviors and that has left me with no insurance for myself but I was able to draw a salary through his waiver as a care provider and am happy to do it regardless of the far different standard of living. </p><p> </p><p>I guess for me, I am glad for my tax money to go to people like our kids. I'm not as comfortable with some situations (I knew a girl who said she was on disability because she is an alcoholic, not sure if that was true without another condition but that confused me) .</p><p></p><p>I am sure my son will do some kind of job but he will not be able to make a living where he can support himself and he will always need supervision. If I won the lottery I would not do SSI but I do not feel badly about it at all. </p><p></p><p>There is a lawyer here who specializes in helping people with autism and their families. She recently advised a friend of mine with their son who has mod to high functioning autistm and it was very smooth and simple. She did not even charge them. My friend said they just had to pay small court fees.</p><p></p><p>I think some states dont let you do it on your own but national organizations like ARC have guidance advocates for helping to set up finances and living and guardianship for kids who are delayed and or on the spectrum. </p><p></p><p><a href="http://www.thearc.org/page.aspx?pid=2675" target="_blank">http://www.thearc.org/page.aspx?pid=2675</a></p><p></p><p><a href="http://www.thearc.org/page.aspx?pid=2351" target="_blank">http://www.thearc.org/page.aspx?pid=2351</a> (guardianship)</p><p></p><p>I know here you can have an advocate and take classes (some online) to learn to manage these things.</p><p></p><p>Welcome! Glad you could join us....</p></blockquote><p></p>
[QUOTE="buddy, post: 577987, member: 12886"] Hi! My son will also need guardianship and I can see him not wanting it. I asked our disability advocate and she said that his medical history and school records will be enough to make our case, not to worry. As far as SSI, My son was adopted so he has an adoption subsidy (like child support) through his state of adoption and I was told I had to pick that or SSI. He is declared permanently disabled so he could receive an MA waiver (special needs children who are adopted through the states are eligible for MA until they are adults, 21 if disabled). I have no problem with his receiving any support that will help him reach his potential. If I was in a position to afford the therapies he needed without MA or his waiver I'd gladly have done it but it wasn't feasible for him. When he is 18 I have to decide if I will switch him to SSI or keep the adoption assistance (if he is living with me still he can have the adoption assistance until 21 too, he will only be in grade 11 when he is 18). I needed to stop working my out of home job to care for him due to his behaviors and that has left me with no insurance for myself but I was able to draw a salary through his waiver as a care provider and am happy to do it regardless of the far different standard of living. I guess for me, I am glad for my tax money to go to people like our kids. I'm not as comfortable with some situations (I knew a girl who said she was on disability because she is an alcoholic, not sure if that was true without another condition but that confused me) . I am sure my son will do some kind of job but he will not be able to make a living where he can support himself and he will always need supervision. If I won the lottery I would not do SSI but I do not feel badly about it at all. There is a lawyer here who specializes in helping people with autism and their families. She recently advised a friend of mine with their son who has mod to high functioning autistm and it was very smooth and simple. She did not even charge them. My friend said they just had to pay small court fees. I think some states dont let you do it on your own but national organizations like ARC have guidance advocates for helping to set up finances and living and guardianship for kids who are delayed and or on the spectrum. [url]http://www.thearc.org/page.aspx?pid=2675[/url] [url]http://www.thearc.org/page.aspx?pid=2351[/url] (guardianship) I know here you can have an advocate and take classes (some online) to learn to manage these things. Welcome! Glad you could join us.... [/QUOTE]
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