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<blockquote data-quote="dreamer" data-source="post: 136151" data-attributes="member: 1697"><p>WHEW! I sure had a bit of anxious manic going last nite, huh? sorry bout that! I think the traffic revved me up, first.</p><p></p><p>And then the fear about the chronic hepatitis. ANd not wanting to up the steroids more than they had been previously. </p><p></p><p>I think I made it all sound kinda worse than it really is to live it. </p><p></p><p>I like that "terminal F/Us" Yeah...thats what it is. I flat out asked sons eye docs if they were useing him for some article, or if they needed money or what? THey said they have to keep an eye on his good eye, becuz I guess there is a slight increased risk his good eye will become sympathetic to his bad one....plus loss of one eye while traumatic is not a huge change in lifestyle but if something happens to his good one, now, it would be a huge change in his life. So, yes they watch it like a hawk. ANd the bad one, he would not know if it were dangerously shrunk--and it could potentially become ---well something- and they also have to make sure it still maintains a good blood flow or he could become ill. THus the appts. I iamgine I could transfer him to a doctor closer, BUT it was becuz of the docs closer that he lost the vision in first place, they kept saying he was "fine" so I have little to no faith in the docs here. (also for many many many other reasons----other inidents, etc, I am not comfy at the local docs, hospital etc) </p><p></p><p>Shriners checks him over with a fine tooth comb- if he starts to not do as well, they act. I am very grateful to them, as it is they who took lil dude in with NO referral but mine--becuz lil dude was 7 yrs old and local docs kept saying he was "fine" and THEY found his heterotopia and his CP and his seizures. The cp is very very mild....</p><p>JUst mostly all the F/Us all got dumped on top of each other, all bunched together- partly MY fault- or lifes circumstances fault....becuz we had to do a couple cancellations due to court, weather etc along the way. ANd the price of gas is kinda getting to me. </p><p>ANd the RMH? LOL.....well, Univ of Chicago has a brand new house since we were there last----and while I am very grateful they are there---I have no interest in being there now that the main crisis is over. </p><p></p><p>ANyway, I now have a good nites sleep under mybelt, am far more calm. LOL. What will be will be. </p><p></p><p>I felt embarrased for hijacking Margs thread in Healthful living and for um, well I am not sure- being somewhat flip and casual or --I dont know-----something----on PamelaJs thread. </p><p>Time to enjoy this new spring day! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /> </p><p></p><p>Oh I know- I was confused, did not know what UPC was. </p><p></p><p>Hmmm, LOL, while I was busy hiding from traffic last nite? All 3 kids AND husband texted me. They went .......shopping. Thye were quite excited and proud of themselves. They reminded me when I did get home that tomorrow is a very special day, and they can barely contain their excitement. LOL. </p><p></p><p>Thank you for your replies, thanks for being there. </p><p></p><p>Hope you have a good day!!!!</p></blockquote><p></p>
[QUOTE="dreamer, post: 136151, member: 1697"] WHEW! I sure had a bit of anxious manic going last nite, huh? sorry bout that! I think the traffic revved me up, first. And then the fear about the chronic hepatitis. ANd not wanting to up the steroids more than they had been previously. I think I made it all sound kinda worse than it really is to live it. I like that "terminal F/Us" Yeah...thats what it is. I flat out asked sons eye docs if they were useing him for some article, or if they needed money or what? THey said they have to keep an eye on his good eye, becuz I guess there is a slight increased risk his good eye will become sympathetic to his bad one....plus loss of one eye while traumatic is not a huge change in lifestyle but if something happens to his good one, now, it would be a huge change in his life. So, yes they watch it like a hawk. ANd the bad one, he would not know if it were dangerously shrunk--and it could potentially become ---well something- and they also have to make sure it still maintains a good blood flow or he could become ill. THus the appts. I iamgine I could transfer him to a doctor closer, BUT it was becuz of the docs closer that he lost the vision in first place, they kept saying he was "fine" so I have little to no faith in the docs here. (also for many many many other reasons----other inidents, etc, I am not comfy at the local docs, hospital etc) Shriners checks him over with a fine tooth comb- if he starts to not do as well, they act. I am very grateful to them, as it is they who took lil dude in with NO referral but mine--becuz lil dude was 7 yrs old and local docs kept saying he was "fine" and THEY found his heterotopia and his CP and his seizures. The cp is very very mild.... JUst mostly all the F/Us all got dumped on top of each other, all bunched together- partly MY fault- or lifes circumstances fault....becuz we had to do a couple cancellations due to court, weather etc along the way. ANd the price of gas is kinda getting to me. ANd the RMH? LOL.....well, Univ of Chicago has a brand new house since we were there last----and while I am very grateful they are there---I have no interest in being there now that the main crisis is over. ANyway, I now have a good nites sleep under mybelt, am far more calm. LOL. What will be will be. I felt embarrased for hijacking Margs thread in Healthful living and for um, well I am not sure- being somewhat flip and casual or --I dont know-----something----on PamelaJs thread. Time to enjoy this new spring day! :-) Oh I know- I was confused, did not know what UPC was. Hmmm, LOL, while I was busy hiding from traffic last nite? All 3 kids AND husband texted me. They went .......shopping. Thye were quite excited and proud of themselves. They reminded me when I did get home that tomorrow is a very special day, and they can barely contain their excitement. LOL. Thank you for your replies, thanks for being there. Hope you have a good day!!!! [/QUOTE]
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