One more question

Discussion in 'General Parenting' started by Ktllc, Jan 20, 2012.

  1. Ktllc

    Ktllc New Member

    I took V to the ENT yesterday to follow up on the hearing loss (highly likely due to fluid). He has been taking zyrtec for 4 weeks in the hope of drying everything.
    He passed his hearing inthe right ear but the left ear, although a bit better, is still not where it should be.
    As far as visual appearance: they look the same, full of "stuff" but not infected.
    The ENT is aware of the coomunication issues and he admitted getting "real touchy" when he has a kid with both hearing/ear issues and speech language delay... On the otherhand, surgery would involve tubes, cutting nodules and tonsiles. He explained that it is the best protocole so we don't have to keep on puting tubes every 2 years. Enlarged nodules and tonsiles tend to block things and create ear problems.
    BUT, the sleep study did raise any red flags, which might mean there are no blockage even though his tonsiles and nodules are enlarged.
    Which bring the dilemma: surgery or not ? The ENT is really not sure. He thinks that the hearing issue is indeed not helping, but maybe not the reason of the communication dealy. He wants to be sure to do surgery for the right reasons.
    We agreed to wait on the developmental pediatrician. to decide.
    Let the devel. pediatrician. make the call.
    For now: see ET in 3 months and keep up with the zyrtec.
    We see devel. pediatrician on Tuesday.
    What are your thoughts??
  2. TerryJ2

    TerryJ2 Well-Known Member

    I'm no expert, but I know a half doz kids, incl my now-adult niece, who had tubes in their ears. None of them had speech delays. I also know at least that many who did not (incl difficult child) and they also have no speech delays.
    Gosh, what a hard decision.
    I am no help at all!
  3. zaftigmama

    zaftigmama New Member

    To consult with dev pediatrician is a good idea. Hearing loss is a big enough deal that I'd probably get tubes anyway, though--it's been linked to behavior problems. My kids have enough challenges and I want to give them every advantage.
  4. buddy

    buddy New Member

    I dont know about the tonsils/adenoids etc... but I would probably go for the tubes, even two years can be enough time at his age (his head and neck will grow and the tubes will change angle in that time) that it could be just that he needs it one (more? has he had them before??) time.

    antibiotics will not get rid of the fluid build up. Only helps if it gets infected. I would be of the mind that reducing one more issue is worth the tube surgery even if it is just in case. For that day his one ear was OK but with fluid and pressure that can vary day by day. I have monitored kids daily for parents when I worked in a school where no one else knew how to do the hearing tests, I did full threshold testing, not just a screen (adn even had an audiology sound proof booth, that was quite a district... they bought the booth for a seclusion room! then found the public was upset, duh so it became my office, LOL ) There was often a 20-30 dB fluctuation in the speech range.... No way to tell if that is true for V of course unless teh nurse has equipment, and would be willing to do weekly screens or something... but she probably would not do threshold testing to see where he actually was.... not sure if they she would be trained to do that.

    Some people find adjusting diet helpful, that is.... for some mucous building foods, or foods that contribute to allergies etc I dont know all of them, maybe others here do??? Getting rid of dairy for my niece stopped all of it. NO more ear issues and also, by the way no more excema for her.

    Now she is 11 and can have cheese and other dairy once in a while no problem.

    I would for sure ask the dev. pediatrician. too.... sometimes more brains can help sort thru it all.
  5. TeDo

    TeDo Guest

    Did they take xrays of the tonsils and adenoids? difficult child's were VERY enlarged as showed by xrays. Personally, if there was something I could definitively rule out, I would do it. That is just MHO because I don't like to leave ANY stone unturned when it comes to helping my kids. That is just me so take it for what it's worth.
  6. susiestar

    susiestar Roll With It

    Have you had an ear infection after you were an adult? I got one when Wiz was little and had so many. I was truly AFRAID of what I might do because the pain was so awful that I just wanted to get away with it and I couldn't tolerate being touched, noises, and my other sensory problems were a LOT worse. In the twenty years I have been married to my husband that was one of TWO times I called him home from work because I could not care for our child. I was truly afraid Wiz would come up and try to pat my arm and the tactile defensiveness would have me lash out before I could think. That is a sensory issue I have struggled with when in extreme pain - migraine is usually the time it happens but it was even worse with the ear infection.

    I would happily have stuck an icepick into my ear to stop the pain. The doctor told me that ear pain is one of the worst things he sees - people think it is a little kid problem and no big deal and then they get one as an adult and EVERYTHING changes.

    Just because the fluid doesn't look infected does NOT mean it isn't or that it is not painful. V may have had this for so long that he doesn't know that people do not all feel that way all the time. It is common in kids for them to not report pain that is chronic because they think that it is just how bodies feel and everyone feels that all the time.

    When Wiz was little we had probably fifty dr appts where I took him in and said his ear was infected and it hurt and the dr looked and said it was just fine, I was a new mommy and needed to relax, blah blah blah. EVERY. SINGLE. TIME. We would go back in 2-3 days and the doctor would say it was "the worst infection I have ever seen!! Why didn't you bring him in sooner? NO kid should have it get this bad!" Any time we saw a new doctor there were about 5 visits with the "why didn't you" koi and I pointed out EACH time that the paper just under hte one for this visit was about the last and it was two days ago, so WHO didn't treat the problem?

    I know that ears can HURT from the fluid in them long before ANY infection can be seen. Not only from Wiz but also because my older bro had HORRIBLE ear problems and we had an amazing ENT when we were little who wanted him treated if they can see fluid, at least with the pain drops. They make a benzocaine or some -caine ear drop that you warm in a cup of water and then put in the ear and it really soothes the pain. WOn't help speech but can help keep him comfortable when he has an ear problem. It was called Auralgan last time we had some.

    Chronic pain of ANY kind, even low grade pain, can cause major changes in a child's behavior. Kids also are not as able to figure out where they hurt. I know that sounds strange, you are hte one that hurts, surely you know where it is coming from, right? But it is WRONG and is super wrong in a child with sensory issues. thank you is 12 and just this winter was able for the first time to say "my lungs are tight, I need my inhaler". Until now the rest of us noticed a look on his face and a change in his posture and would say "thank you, stop a minute. What is your body telling you? What does it need?" Until about 2-3 years ago I actually would ask how his feet feel, his legs, his hips, his stomach, etc.... and we went through the whole body to find out what was wrong. He simply could not come out and say "my head hurts" or "my tummy hurts" because the sensory impulses are all mixed up. With Wiz I would take him to the doctor f he had a new wrinkle or a really bad day or reverted to some past behavior problem. 90% of the time when he had a problem at school that was "big", he was sick. That is what it took to get the doctor to listen when I said he had migraines at age 2. He would just freak out and destroy anything he could and he was such a fun, cool little kid that it was really really NOT normal for him.

    So just because the doctor isn't seeing anything and V isn't complaining of pain doesn't mean there might not be a problem. For me that would be a factor in this decision.

    Another factor would be the chance that the surgery could improve a lot of things. LOTS of kids have fluid in their ears that delays speech. You won't know if this is something that the surgery would help until you do it. Taking out the tonsils and adenoids CAN help reduce the number and severity of future infections. thank you was always sick with a cold of some type until he was four. Then the ENT recommended the tubes/tonsils/adenoids surgery and said that they are seeing a lot of kids are really helped by it. Even kids who don't complain of a lot of ear pain but have fluid and colds a lot are helped. This was 8 yrs ago, but from the time he had the surgery he has had fewer cold/ear infections/viruses to the point that we went from at least one dr appointment a month to having well check and MAYBE 2 other visits a year and those were more from scrapes/sprains because he fell or walked into something. Before that he was just a "sickly kid".

    They won't be able to give you a 100% sure answer that the surgery will or won't fix the speech issues. I am betting that even though they say the fluid isn't infected that it is at least uncomfortable sometimes and V is just unable to tell you this. He may not yet be able to stop and think and tell you that this or that body part hurts at this time. SOme kids have to learn this. It isn't an easy decision and of course I support whatever you do, but if there was a chance it could help I would probably try it.

    Esp after having had an ear infection when Wiz was little. It was just the most intense, drive you insane pain I have ever had. Given over 40 years of chronic migraines and25 years of treatment for chronic pain conditions, that says a LOT. I thought I was going to lose my mind. The mere fact that I THOUGHT about sticking an icepick all the way into my ear scared me, esp because we had one! I made husband hide it until after I was better.
  7. SomewhereOutThere

    SomewhereOutThere Well-Known Member

    My brother had enlarged tonsils and adenoids that were growing into his ear canals. That cost him 50% of his hearing at the time. He did not have any speech problems (except couldn't hear well if he wasn't facing you), but he did need to have his tonsils taken out. His hearing to normal after that.

    I also had two kids who needed tubes, one until she was twelve. Both of them had speech enunciation problems, but neither had a speech delay (there's a big difference). Speech Therapy helped them both learn how to pronounce words better.
  8. DDD

    DDD Well-Known Member

    difficult child had tubes and then the T/A's removed. I think he was 2 or 3 for tubes and 3 or 4 with the T/A. He hasn't had ear problems since and neither procedure caused him any problems. on the other hand I do carry a bit of guilt because husband and I didn't know that second hand smoke is shown to be a problem. Sigh. Only found out when he was maybe six and then we quit smoking except of the open patio. DDD
  9. buddy

    buddy New Member

    ONe thought that popped up.... remember others here have said this and I have a friend who recently went thru it...

    If you think he could ever end up with needing ton. and adenoids removed, then younger is better.
  10. Ktllc

    Ktllc New Member

    After reading all the posts and talking about it, we are leaning towards surgery. But, of course, we'll wait for devel. pediatrician's opinion.
    The reason ENT suggested cutting everything: V already had tubes put in 2 years ago and they just fell out. And he already starts having issues...
    And to be completely honest, it is an expensive surgery... the kids might have to go on my insurance next year as we are growing out of the income limit for the state kids' insurance. If we could do a ONE surgery fix it all (as far as ear, hearing issues), that would be better financially. Sorry, but I do have to keep those things in mind.
  11. buddy

    buddy New Member

    Why be sorry? That makes a ton of sense. You are likely going to that place already and money or not.. one going under anesthesia seems to make more sense.

    You should never be sorry for doing what is best for your family..... HUGS!!!! You are a wonderful mom.