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phone call from teacher........
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<blockquote data-quote="Jena" data-source="post: 197341" data-attributes="member: 4514"><p>hi guys....... this is such a good supportive and informative place. it often eases my own anxiety to know that we have all been here, and it's incredibly helpful to learn what others have done about it.</p><p></p><p>marg - thank you for sharing all of that, as well as the others i am not naming because i can't scroll up on computer that well, kids are in process of breaking my labtop lol slowly each day........ anyhow i see your point and it's good advice and i am sorry to hear that you had to struggle through this same exact thing on multiple levels, it is very hard on us parents as strong advocates for our children, with our only "hidden agenda" or goal being making their lives more comfortable, and hopefully making them fully functional so that they may someday live a life as we do able to set goals, attain them, just live freely and independently.</p><p></p><p>i do need her, so iam walking a careful line with her. she does care her emotion overcame as her as it does with most with whom meet difficult child and become emcompassed by the confusion of all the varying diagnosis and varying good, bad, other behaviors displayed.</p><p></p><p>i did infact sign a release form so that she may herself contact the dr. and hear his reasons, she does not "need" to, nor do i need her "approval" yet her support through this will be i believe immesurable at the end of the day.</p><p></p><p>i am infact wavering at this point with this dr. difficult child's been sleeping by midnight this week, excited about various actiivties in school, yes yet anxiety ridden and waking up every a.m. covered with pee up to her hair. yet the weeks they do change as we all know varying from up all night and driven by a motor to crashing and sleeping peacefully and getting at least 6 hrs of sleep which for us is excellent.</p><p></p><p>there was dr. with whom truly cared about difficult child and also worked very hard with me in helping her, yet he was expensive in nyc and i couldn't afford him anymore. i have emailed him once asking for him to take us on again and he never responded i'm tending to believe at this point a phone call to him would be beneficial to run by him what this other dr is thinking of doing and see what his response is to it and see if there is any possibility of bringing him bk on again. he was the type of dedicated dr with whom would show up and attend an iep mtg if i needed him to. he worked for me and with me for difficult child for 7 mos with no payment other than maybe 300 the insurance co gave him. he was good.</p><p></p><p>jane i am sorry to hear that you as well struggled through this. it is very hard for us parents. everyone thinks they know yet we know best and at times the varying opinions of others and voices of others can sway our judgement and make us confused.....at least for me.</p><p></p><p>ok gotta go for now, trying to build up this at home paralegal business also it's the only way i can see right now to make money...</p><p></p><p>thanks again to all of you. so helpful.</p></blockquote><p></p>
[QUOTE="Jena, post: 197341, member: 4514"] hi guys....... this is such a good supportive and informative place. it often eases my own anxiety to know that we have all been here, and it's incredibly helpful to learn what others have done about it. marg - thank you for sharing all of that, as well as the others i am not naming because i can't scroll up on computer that well, kids are in process of breaking my labtop lol slowly each day........ anyhow i see your point and it's good advice and i am sorry to hear that you had to struggle through this same exact thing on multiple levels, it is very hard on us parents as strong advocates for our children, with our only "hidden agenda" or goal being making their lives more comfortable, and hopefully making them fully functional so that they may someday live a life as we do able to set goals, attain them, just live freely and independently. i do need her, so iam walking a careful line with her. she does care her emotion overcame as her as it does with most with whom meet difficult child and become emcompassed by the confusion of all the varying diagnosis and varying good, bad, other behaviors displayed. i did infact sign a release form so that she may herself contact the dr. and hear his reasons, she does not "need" to, nor do i need her "approval" yet her support through this will be i believe immesurable at the end of the day. i am infact wavering at this point with this dr. difficult child's been sleeping by midnight this week, excited about various actiivties in school, yes yet anxiety ridden and waking up every a.m. covered with pee up to her hair. yet the weeks they do change as we all know varying from up all night and driven by a motor to crashing and sleeping peacefully and getting at least 6 hrs of sleep which for us is excellent. there was dr. with whom truly cared about difficult child and also worked very hard with me in helping her, yet he was expensive in nyc and i couldn't afford him anymore. i have emailed him once asking for him to take us on again and he never responded i'm tending to believe at this point a phone call to him would be beneficial to run by him what this other dr is thinking of doing and see what his response is to it and see if there is any possibility of bringing him bk on again. he was the type of dedicated dr with whom would show up and attend an iep mtg if i needed him to. he worked for me and with me for difficult child for 7 mos with no payment other than maybe 300 the insurance co gave him. he was good. jane i am sorry to hear that you as well struggled through this. it is very hard for us parents. everyone thinks they know yet we know best and at times the varying opinions of others and voices of others can sway our judgement and make us confused.....at least for me. ok gotta go for now, trying to build up this at home paralegal business also it's the only way i can see right now to make money... thanks again to all of you. so helpful. [/QUOTE]
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