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I agree that it feels like a slap in the face every time you see your child's diagnosis (of some sort) in black and white.  It's never anything you didn't know, but just to see it hurts a lot.  I always have to stand back up and dust myself off to get on with the day.  FWIW, a good cry does wonders to get some of it off your chest.  That being said, we continue to have to be warrior moms (where are the warrior dads?) and I never can see an end to it.  My difficult child (11) didn't want me to leave while he was at baseball practice (1 hour)!!  I thought we'd progressed a little with his separation anxiety.  (NOT!)  Things like this are NOT understood even by a doctor, unless they live it.  I'm so sorry you go through this...