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<blockquote data-quote="flutterby" data-source="post: 354788" data-attributes="member: 7083"><p>Thank you, Marg, for taking the time to go into such depth of information. I'm printing that out.</p><p></p><p>I do use my GP as my point, and referrals go out from her and the specialists "report" (for lack of a better word) back to her. She just doesn't know anything about CFS - I'm not entirely sure she believes I have it, but they haven't found anything else - so she's grasping at straws.</p><p></p><p>I'm not at all interested in that FM/Fatigue Clinic. However, the doctor at OSU (Ohio State University) is in Integrative Medicine and is FM/CFS aware - something not all doctors are, as is illustrated by my GP (whom I adore, by the way).</p><p></p><p>I've seen 3 rheumy's. The first one lost interest after he diagnosed me with FM, the other 2 (one at OSU and one at the Cleveland Clinic) both said that I have FM and they don't need to see me again. I've seen 2 neurologists (because the first one left the practice) and other than diagnosing ulnar nerve damage, and ordering the neuropsychologist testing, they're not interested in doing anything else. The endocrinologist stated that I am a "complicated patient that is going to take some time to figure out". At this point, I'm going to see what the pain doctor does with those issues rather than continue to "specialist shop". I also want to see what the FM/CFS aware doctor has to offer. My GP will be aware of the new doctor. For one thing, I always keep her in the loop. For another, because of me she's found several new doctors to refer patients to, so I always let her know when I've stumbled onto something/someone. She's told me before, for example, when I found the psychiatrist for difficult child without a wait that she told the nurse to "right that down and don't lose it" so she can give it out to other patients. I am a very active participant in my health care.</p><p></p><p>It's not like I just lie around the house all day and do nothing. I have difficult child to take care of, running to appointments, IEP meetings and meeting with professionals to be on "my" team (as opposed to the school staff), animals to take care of - including chasing my bad cat around the neighborhood today to break up a cat fight - laundry to do, etc. It's just that those things take everything out of me. I have appointments every day this week except for Friday and I know I'm going to be down for a week. But, the appointments are unavoidable. And Friday I plan to go visit my bff while the kids are in school. Just to get out of the house. She has lupus, so she gets it. And we've been friends for 11 years. She was there when I did the nasty depression thing 8 years ago.</p><p></p><p>difficult child did yoga in the psychiatric hospital and she came home with a sheet with the stretches and what order. We've done that a couple of times. Once the pain calms down again, I'll start that up again. It's interesting how yoga works. When I need it to relax me, it does. But, I can do the same stretches/exercises and feel invigorated if that's what I need.</p><p></p><p>And then there's the cognitive stuff. That really distresses me.</p><p></p><p>I'm trying to do the right things. I'm trying to correct my thinking. I'm just going through a really rough patch and it feels just like it did 8 years ago, and I'm terrified of going back to that place. Everything just hit me at once. But, I always end up putting one foot in front of the other. Sometimes it just takes longer than other times. And it really sucks while you're going through it. I feel very despondent and hopeless at the moment. And I really don't like the way it feels.</p></blockquote><p></p>
[QUOTE="flutterby, post: 354788, member: 7083"] Thank you, Marg, for taking the time to go into such depth of information. I'm printing that out. I do use my GP as my point, and referrals go out from her and the specialists "report" (for lack of a better word) back to her. She just doesn't know anything about CFS - I'm not entirely sure she believes I have it, but they haven't found anything else - so she's grasping at straws. I'm not at all interested in that FM/Fatigue Clinic. However, the doctor at OSU (Ohio State University) is in Integrative Medicine and is FM/CFS aware - something not all doctors are, as is illustrated by my GP (whom I adore, by the way). I've seen 3 rheumy's. The first one lost interest after he diagnosed me with FM, the other 2 (one at OSU and one at the Cleveland Clinic) both said that I have FM and they don't need to see me again. I've seen 2 neurologists (because the first one left the practice) and other than diagnosing ulnar nerve damage, and ordering the neuropsychologist testing, they're not interested in doing anything else. The endocrinologist stated that I am a "complicated patient that is going to take some time to figure out". At this point, I'm going to see what the pain doctor does with those issues rather than continue to "specialist shop". I also want to see what the FM/CFS aware doctor has to offer. My GP will be aware of the new doctor. For one thing, I always keep her in the loop. For another, because of me she's found several new doctors to refer patients to, so I always let her know when I've stumbled onto something/someone. She's told me before, for example, when I found the psychiatrist for difficult child without a wait that she told the nurse to "right that down and don't lose it" so she can give it out to other patients. I am a very active participant in my health care. It's not like I just lie around the house all day and do nothing. I have difficult child to take care of, running to appointments, IEP meetings and meeting with professionals to be on "my" team (as opposed to the school staff), animals to take care of - including chasing my bad cat around the neighborhood today to break up a cat fight - laundry to do, etc. It's just that those things take everything out of me. I have appointments every day this week except for Friday and I know I'm going to be down for a week. But, the appointments are unavoidable. And Friday I plan to go visit my bff while the kids are in school. Just to get out of the house. She has lupus, so she gets it. And we've been friends for 11 years. She was there when I did the nasty depression thing 8 years ago. difficult child did yoga in the psychiatric hospital and she came home with a sheet with the stretches and what order. We've done that a couple of times. Once the pain calms down again, I'll start that up again. It's interesting how yoga works. When I need it to relax me, it does. But, I can do the same stretches/exercises and feel invigorated if that's what I need. And then there's the cognitive stuff. That really distresses me. I'm trying to do the right things. I'm trying to correct my thinking. I'm just going through a really rough patch and it feels just like it did 8 years ago, and I'm terrified of going back to that place. Everything just hit me at once. But, I always end up putting one foot in front of the other. Sometimes it just takes longer than other times. And it really sucks while you're going through it. I feel very despondent and hopeless at the moment. And I really don't like the way it feels. [/QUOTE]
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