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<blockquote data-quote="Marguerite" data-source="post: 354845" data-attributes="member: 1991"><p>You are right - she wouldn't want to live. If I had known then what I know now, I probably would have gone through with it. But looking back, I am very glad I am still here because I get a lot more out of life than I thought I would.</p><p></p><p>I'm not saying, Hope, that your daughter will always have this. Nor am I saying I will, or Heather will. But we have to get on and live life NOW, not wait until we recover to get on with life. </p><p></p><p>Let's say we're stuck with this condition for two years. If you spend tat two years doing noting, staying uninvolved with the world and with life, you wake up one day recovered, but the rest of the world is two years ahead of you.</p><p></p><p>We know now, that going to bed and staying there to rest does NOT speed up recovery from CFS. The people I have known who have recovered, have done so in various ways but mostly, by doing as much as they can within their own limitations. Most have had their acute phases when they were bedridden; but as soon as they could, they got up and began to take their life back.</p><p></p><p>The ones who get this condition in their teens tend to have more severe symptoms; but they also are the ones who seem to recover more fully, often quite spectacularly. Also in my experience, those who developed this after getting glandular fever were also more likely to recover. There was a peak at the 2 year mark and another at the five year mark. Most recovered within the two years. But I have known a woman who recovered completely, after 12 years. </p><p></p><p>There is always hope.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 354845, member: 1991"] You are right - she wouldn't want to live. If I had known then what I know now, I probably would have gone through with it. But looking back, I am very glad I am still here because I get a lot more out of life than I thought I would. I'm not saying, Hope, that your daughter will always have this. Nor am I saying I will, or Heather will. But we have to get on and live life NOW, not wait until we recover to get on with life. Let's say we're stuck with this condition for two years. If you spend tat two years doing noting, staying uninvolved with the world and with life, you wake up one day recovered, but the rest of the world is two years ahead of you. We know now, that going to bed and staying there to rest does NOT speed up recovery from CFS. The people I have known who have recovered, have done so in various ways but mostly, by doing as much as they can within their own limitations. Most have had their acute phases when they were bedridden; but as soon as they could, they got up and began to take their life back. The ones who get this condition in their teens tend to have more severe symptoms; but they also are the ones who seem to recover more fully, often quite spectacularly. Also in my experience, those who developed this after getting glandular fever were also more likely to recover. There was a peak at the 2 year mark and another at the five year mark. Most recovered within the two years. But I have known a woman who recovered completely, after 12 years. There is always hope. Marg [/QUOTE]
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