Totally understand your frustration levels. I have to tell you the truth, after a certain point I quit researching. I made the professionals do their jobs. I went in with ideas; more so I went in with the attitude that if this was beyond them I needed a referral to a doctor who could/would handle the situation.
In the end that worked - my sanity (what was left of it) was saved as well.
Keeping good thoughts that you find answers quickly.