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General Parenting
When the long term future for your child is very bleak....
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<blockquote data-quote="slsh" data-source="post: 122840" data-attributes="member: 8"><p>Pepperidge,</p><p> </p><p>I'm "lucky" in that we started having to face this idea with our oldest long before we were hit with the possibility that thank you also may require life-long supervision. It's a famililar path to us now, but certainly never easy.</p><p> </p><p>My best advice to you is not to look too far down the road right now. Yes, you have an inkling that perhaps independence may not be in difficult child's future, but ... it's not written in stone. I always expect the worst - that way if it happens, I'm prepared and not surprised. If it doesn't, I feel like I won the lottery! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /></p><p> </p><p>For us, it seems we cruise along fairly well for a while and then the "differences" really hit hard. Milestones have always been the hardest - I remember last spring following an ambulance with Boo up to a hospital in the city, getting stuck in horrible traffic on the freeway, and there was a limo next to us with prom goers. I just sobbed. He should have been going to *his* senior prom (not that they have one for "those" kids), but instead we were schlepping up for another admission. </p><p> </p><p>The grief comes in waves, then goes, then returns. It just is - I do think it's easier to embrace and deal with the grief than it is to fight it.</p><p> </p><p>I've kept my ears open for years about services or programs, both for Boo and for thank you. Haven't done anything with the info yet but if/when the day comes, I at least have a starting place. </p><p> </p><p>A gentle hug to you. It's a really hard thing to have to face and unfortunately, I think we have to face it over and over and over.</p></blockquote><p></p>
[QUOTE="slsh, post: 122840, member: 8"] Pepperidge, I'm "lucky" in that we started having to face this idea with our oldest long before we were hit with the possibility that thank you also may require life-long supervision. It's a famililar path to us now, but certainly never easy. My best advice to you is not to look too far down the road right now. Yes, you have an inkling that perhaps independence may not be in difficult child's future, but ... it's not written in stone. I always expect the worst - that way if it happens, I'm prepared and not surprised. If it doesn't, I feel like I won the lottery! ;) For us, it seems we cruise along fairly well for a while and then the "differences" really hit hard. Milestones have always been the hardest - I remember last spring following an ambulance with Boo up to a hospital in the city, getting stuck in horrible traffic on the freeway, and there was a limo next to us with prom goers. I just sobbed. He should have been going to *his* senior prom (not that they have one for "those" kids), but instead we were schlepping up for another admission. The grief comes in waves, then goes, then returns. It just is - I do think it's easier to embrace and deal with the grief than it is to fight it. I've kept my ears open for years about services or programs, both for Boo and for thank you. Haven't done anything with the info yet but if/when the day comes, I at least have a starting place. A gentle hug to you. It's a really hard thing to have to face and unfortunately, I think we have to face it over and over and over. [/QUOTE]
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When the long term future for your child is very bleak....
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