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Failure to Thrive
When they want to do their own thing...
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<blockquote data-quote="AnnieO" data-source="post: 684184" data-attributes="member: 6705"><p>When we took him for his neuropsychologist originally, we told them what we had observed, what we knew for a fact (Pat got stuck in the birth canal during birth and was an emergency C-Section), and what we thought might have happened (alcohol exposure in utero). I was really confused as to why Bill didn't KNOW about the alcohol, but then found out that biomom liked to take off with her friends a LOT, and he was also active duty at the time and working a LOT in the field. He blames himself for some of Pat's issues, and Belle's too,, because of that. We're working through that in counseling. Anyway, when we got the report (that somehow is missing and has been for several years... Even contacting Children's of Cincinnati, who diagnosis'd him, does not get us the report we had at one time... Which strikes me as REALLY ODD)... It showed "markers" of "possible" Fetal Alcohol Syndrome (FAS), including facial features that, frankly, could also be attributed to being partially Asian. It diagnosis'd Pervasive Developmental Disorder (PDD)-not otherwise specified and "mild" ADHD as well. They did test him for Fragile X (OMG that was craziness, holding the kid down for blood draws!!), and I think they did something to rule out brain damage from the birth canal issue. CT scan? I don't know after all these years.</p><p></p><p>A couple years ago, we had him evaluated for Auditory Processing Disorders (APD). The results came back "normal" but on the edge. The doctor suggested we request accommodations in his IEP. And that was during the online school thing, so the accommodations were super easy. Didn't help. His pediatrician, when I was BEGGING for a referral for Auditory Processing Disorders (APD) testing, was very much anti said testing and finally told me she was giving me a referral to prove I was wrong. (Group of docs, all the others are FANTASTIC. I just don't schedule with her anymore. Ever.)</p><p></p><p>We've struggled with getting the school to follow his IEP. Mostly, they're just too darned busy... It's not that they don't care, they just don't have a lot of time for a kid who flatly refuses to self-advocate. That's one of the goals, too - we've set that for years and years and no matter how much we remind him, we're not there to do it for him - so he doesn't do it! After a certain point, though, if he isn't going to self-advocate, there's not a whole lot we can do.</p><p></p><p>Now comes the caveat that I always HATE posting. The online school also suggested we have him re-evaluated as he was nearing legal adulthood. Due to insurance silliness, I had to get a referral... Got that... scheduled an appointment... And Pat refused to go. Thank goodness they were understanding when I had to cancel.</p><p></p><p>I suppose I could tell Bill to ask the Prevention Coordinator if she could make that a part of Pat's requirements...</p></blockquote><p></p>
[QUOTE="AnnieO, post: 684184, member: 6705"] When we took him for his neuropsychologist originally, we told them what we had observed, what we knew for a fact (Pat got stuck in the birth canal during birth and was an emergency C-Section), and what we thought might have happened (alcohol exposure in utero). I was really confused as to why Bill didn't KNOW about the alcohol, but then found out that biomom liked to take off with her friends a LOT, and he was also active duty at the time and working a LOT in the field. He blames himself for some of Pat's issues, and Belle's too,, because of that. We're working through that in counseling. Anyway, when we got the report (that somehow is missing and has been for several years... Even contacting Children's of Cincinnati, who diagnosis'd him, does not get us the report we had at one time... Which strikes me as REALLY ODD)... It showed "markers" of "possible" Fetal Alcohol Syndrome (FAS), including facial features that, frankly, could also be attributed to being partially Asian. It diagnosis'd Pervasive Developmental Disorder (PDD)-not otherwise specified and "mild" ADHD as well. They did test him for Fragile X (OMG that was craziness, holding the kid down for blood draws!!), and I think they did something to rule out brain damage from the birth canal issue. CT scan? I don't know after all these years. A couple years ago, we had him evaluated for Auditory Processing Disorders (APD). The results came back "normal" but on the edge. The doctor suggested we request accommodations in his IEP. And that was during the online school thing, so the accommodations were super easy. Didn't help. His pediatrician, when I was BEGGING for a referral for Auditory Processing Disorders (APD) testing, was very much anti said testing and finally told me she was giving me a referral to prove I was wrong. (Group of docs, all the others are FANTASTIC. I just don't schedule with her anymore. Ever.) We've struggled with getting the school to follow his IEP. Mostly, they're just too darned busy... It's not that they don't care, they just don't have a lot of time for a kid who flatly refuses to self-advocate. That's one of the goals, too - we've set that for years and years and no matter how much we remind him, we're not there to do it for him - so he doesn't do it! After a certain point, though, if he isn't going to self-advocate, there's not a whole lot we can do. Now comes the caveat that I always HATE posting. The online school also suggested we have him re-evaluated as he was nearing legal adulthood. Due to insurance silliness, I had to get a referral... Got that... scheduled an appointment... And Pat refused to go. Thank goodness they were understanding when I had to cancel. I suppose I could tell Bill to ask the Prevention Coordinator if she could make that a part of Pat's requirements... [/QUOTE]
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