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<blockquote data-quote="Hound dog" data-source="post: 443648" data-attributes="member: 84"><p>If it were me, I don't think I'd take something as serious and unusual (rare) without having it confirmed with a 2nd opinion. </p><p></p><p>Even though I knew Travis' neuro was a class A doctor and on his toes........when the results for the polycythemia (also rare) came back, we both felt it sound to seek a 2nd opinion. A neuro doesn't specialize in blood disorders. As it is......it can be difficult finding someone who knows what they're doing who DOES specialize in blood disorders.</p><p></p><p>You daughter is in my prayers. Fear of the unknown is the worst of all. Yet you're not going to get a doctor to pin it down for you because I'm betting each case is different with different results and degrees of function. That topped with how uncommon it is.......well, he already told you they don't know a whole lot about it.</p></blockquote><p></p>
[QUOTE="Hound dog, post: 443648, member: 84"] If it were me, I don't think I'd take something as serious and unusual (rare) without having it confirmed with a 2nd opinion. Even though I knew Travis' neuro was a class A doctor and on his toes........when the results for the polycythemia (also rare) came back, we both felt it sound to seek a 2nd opinion. A neuro doesn't specialize in blood disorders. As it is......it can be difficult finding someone who knows what they're doing who DOES specialize in blood disorders. You daughter is in my prayers. Fear of the unknown is the worst of all. Yet you're not going to get a doctor to pin it down for you because I'm betting each case is different with different results and degrees of function. That topped with how uncommon it is.......well, he already told you they don't know a whole lot about it. [/QUOTE]
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