K
Kjs
Guest
difficult child has suffered such severe headaches for so long. It hurts to know I cannot help him. He has had every test possible. I refused the pediatricians request to go to a pediatric neurologist. Did that for two years. Did tests and put him on topomax for about two years. didn't help so he quit. Weaned off.
Well with the recent headaches he was put back on Topomax. Pediatrician called the neurologist for advice. Started at 25 mg's, then suppose to go to 50 after a week.
Well, I need to back track a bit here. For several months difficult child hasn't been feeling well. In addition to headaches he has been throwing up. He takes excedrin almost daily for headaches. Dr. warned him it can cause ulcers.
He IS very careful to eat each time though.
His anxiety is out of control. He thinks he is dying all the time. Every ache or pain he thinks he has Cancer. (they are doing the chapter in honors biotech on cancer). It is non stop thinking he is dying. Afraid to leave the house.
I did write previously about the reaction and not being able to breathe last time we were in E/R for headache injection. He actually asked the doctor if he was going to die. Then made the doctor promise.
Well, a week ago he was going to spend the night at a friends. About midnight he called husband (I was working). Said he was feeling funny. Didn't know where he was, what he was doing, can't comprehend things, dizzy, light headed, on and on.
That was Friday. It is still like that but not to the extent. Getting better each day. But what I did was stop the Topomax. I talked to the pharmacist on my way home last Saturday and he printed out all side effects. Everything he was describing. However everything he was describing also are symptoms of Generalized Anxiety Disorder (GAD).
Called his Dr. on Monday. He called neurologist and called me back. Yes, take him off Topomax. He is still on the very low dose so it shouldn't be a problem. However, the goal here is to get headaches under control. Now we don't know what to do. difficult child is SO full of anxiety it scares me. Every bump. He touched his head and had a sore spot and thought he had a brain tumor. Each doctor, including ER and dentist and pediatrician have ALL said how smart he is, in conversation. His mind is always going and always worrying though.
Could Topomax DO that? He was on it with no issues before.
Also, he turned 14 nine days ago. No signs of puberty. NONE. Dr. did a zillion blood tests. Seven tubes. He reported all normal. Testostorone shows "he is out of infancy and puberty should be within the next year".
That is a long time for a kid in High School who hasn't grown and voice hasn't changed.
I think if he isn't back to normal I will call psychiatrist. But he has us in and out in a matter of 10 minutes if not less.
I am so scared for him. Hoping it is the Topomax.
Well with the recent headaches he was put back on Topomax. Pediatrician called the neurologist for advice. Started at 25 mg's, then suppose to go to 50 after a week.
Well, I need to back track a bit here. For several months difficult child hasn't been feeling well. In addition to headaches he has been throwing up. He takes excedrin almost daily for headaches. Dr. warned him it can cause ulcers.
He IS very careful to eat each time though.
His anxiety is out of control. He thinks he is dying all the time. Every ache or pain he thinks he has Cancer. (they are doing the chapter in honors biotech on cancer). It is non stop thinking he is dying. Afraid to leave the house.
I did write previously about the reaction and not being able to breathe last time we were in E/R for headache injection. He actually asked the doctor if he was going to die. Then made the doctor promise.
Well, a week ago he was going to spend the night at a friends. About midnight he called husband (I was working). Said he was feeling funny. Didn't know where he was, what he was doing, can't comprehend things, dizzy, light headed, on and on.
That was Friday. It is still like that but not to the extent. Getting better each day. But what I did was stop the Topomax. I talked to the pharmacist on my way home last Saturday and he printed out all side effects. Everything he was describing. However everything he was describing also are symptoms of Generalized Anxiety Disorder (GAD).
Called his Dr. on Monday. He called neurologist and called me back. Yes, take him off Topomax. He is still on the very low dose so it shouldn't be a problem. However, the goal here is to get headaches under control. Now we don't know what to do. difficult child is SO full of anxiety it scares me. Every bump. He touched his head and had a sore spot and thought he had a brain tumor. Each doctor, including ER and dentist and pediatrician have ALL said how smart he is, in conversation. His mind is always going and always worrying though.
Could Topomax DO that? He was on it with no issues before.
Also, he turned 14 nine days ago. No signs of puberty. NONE. Dr. did a zillion blood tests. Seven tubes. He reported all normal. Testostorone shows "he is out of infancy and puberty should be within the next year".
That is a long time for a kid in High School who hasn't grown and voice hasn't changed.
I think if he isn't back to normal I will call psychiatrist. But he has us in and out in a matter of 10 minutes if not less.
I am so scared for him. Hoping it is the Topomax.