Hoping for some good support and advice.
Well, my son was stable for about 6/7 months (may-november) for the first time. Then we took a turn for the worse. Possibly due to strattera or other medication trials and on top of that he had SEVERE constipation that took 10 days of laxative, enemas and mineral oil to get some progress started. He is still not regular. I home schooled him for 2 weeks by choice with the full support of his private school. He was so talkative manic, impulsive and could not stop moving that he was just so disruptive. He ended up not in trouble but removed so much that he was learning nothing and taking way too much of the staff's time (I thought). He started back on Tuesday and things went fairly well. We will meet to determine if he will need a shadow for support. He is still not stable but managing better.
I am grateful that the school and we were able to work well together during this difficult time. Well, yesterday we received our response letter for financial assistance for the up coming year. Last year they were able to reduce the tuition for our 2 children by $6,000 and this year we do not quailfy for any assistance. How can that be??? My husband has earned less money. Between my son and me we have over $12,000 in out of pocket medical expenses. With tuition increase we would have to come up with $8,000 more than last year but meanwhile our total income is far less and how expenses are far more. And that does not include if our son will need a shadow.
We finally feel comfortable with a school that is right for our child/children and we CANNOT afford it. There is NO more money. It is heart breaking to think one or both will have to be pulled out. We give up EVERYTHING for our kids and it is not good enough.
Whenever there is a ray of light such as finding the right school there is a wind that blows it out quickly and reminds us you are supposed to struggle, worry, have nothing and be miserable.
If we can't put the money together our daughter will have to leave the school she loves and her brother gets to stay because of his illness. It is very unfair for her, for us and for him (that he has to be special).
It seems like it is always one disappointment after another!!!
Bugsy's mom
Well, my son was stable for about 6/7 months (may-november) for the first time. Then we took a turn for the worse. Possibly due to strattera or other medication trials and on top of that he had SEVERE constipation that took 10 days of laxative, enemas and mineral oil to get some progress started. He is still not regular. I home schooled him for 2 weeks by choice with the full support of his private school. He was so talkative manic, impulsive and could not stop moving that he was just so disruptive. He ended up not in trouble but removed so much that he was learning nothing and taking way too much of the staff's time (I thought). He started back on Tuesday and things went fairly well. We will meet to determine if he will need a shadow for support. He is still not stable but managing better.
I am grateful that the school and we were able to work well together during this difficult time. Well, yesterday we received our response letter for financial assistance for the up coming year. Last year they were able to reduce the tuition for our 2 children by $6,000 and this year we do not quailfy for any assistance. How can that be??? My husband has earned less money. Between my son and me we have over $12,000 in out of pocket medical expenses. With tuition increase we would have to come up with $8,000 more than last year but meanwhile our total income is far less and how expenses are far more. And that does not include if our son will need a shadow.
We finally feel comfortable with a school that is right for our child/children and we CANNOT afford it. There is NO more money. It is heart breaking to think one or both will have to be pulled out. We give up EVERYTHING for our kids and it is not good enough.
Whenever there is a ray of light such as finding the right school there is a wind that blows it out quickly and reminds us you are supposed to struggle, worry, have nothing and be miserable.
If we can't put the money together our daughter will have to leave the school she loves and her brother gets to stay because of his illness. It is very unfair for her, for us and for him (that he has to be special).
It seems like it is always one disappointment after another!!!
Bugsy's mom