flutterby
Fly away!
The MG medication was working wonders. Then I had the heart blip and stopped taking it for a few days. Started taking it again and it is working on the muscle weakness - quite a bit, although it wears off way before my next dose - but the fatigue is back in a big, big, big way. I get a holter monitor tomorrow to wear for 24 hours so we'll be able to see if it's heart related. I think not, but we'll see.
I had to go back on restasis because my eyes are so dry they feel like there is sand in them, they burn and all that good stuff. My mouth is so dry I gag out of nowhere. And the MG medication is supposed to (as a side effect) increase tear production and salivation. I keep trying to run a fever and now my hair is coming out in handfuls...when I wash it, comb it, or even just run my hands through it, I'm pulling out lots and lots of hair - enough that I flush it instead of putting it in the garbage can. After I wash it and comb it and have pulled all of that hair out, there will be just tons of hair all over my shirt an hour later.
Black depression hit me hard yesterday and I don't know if it's a symptom, if it's the fatigue kicking my butt, or if I just can't take the setback after such an amazing experience. It's scary depression. The kind where I just want to close my eyes and sleep til I die. I never hear from easy child and for some reason tonight I'm fixated on Christmas, and then what will Christmas be like in a few years when difficult child is grown, too. And I can't stand it. I think I'm going to end up alone for the rest of my life.
I had to go back on restasis because my eyes are so dry they feel like there is sand in them, they burn and all that good stuff. My mouth is so dry I gag out of nowhere. And the MG medication is supposed to (as a side effect) increase tear production and salivation. I keep trying to run a fever and now my hair is coming out in handfuls...when I wash it, comb it, or even just run my hands through it, I'm pulling out lots and lots of hair - enough that I flush it instead of putting it in the garbage can. After I wash it and comb it and have pulled all of that hair out, there will be just tons of hair all over my shirt an hour later.
Black depression hit me hard yesterday and I don't know if it's a symptom, if it's the fatigue kicking my butt, or if I just can't take the setback after such an amazing experience. It's scary depression. The kind where I just want to close my eyes and sleep til I die. I never hear from easy child and for some reason tonight I'm fixated on Christmas, and then what will Christmas be like in a few years when difficult child is grown, too. And I can't stand it. I think I'm going to end up alone for the rest of my life.