I dont know if anyone actually remembers or knows about Cory's physical problems but I will explain and then ask for help. He was born with a problem with his shoulder not being attached correctly...left shoulder. It was called a scapular winging and was attached with what we were told was a Sprengels surgical procedure...or...he had Sprengels Deformity I am not completely sure at this point in time. My mind is confused now. He also had a problem with his feet where they turned inward badly and had to have those reverse last laces for almost a year and a half...or two years when he was a baby. You know what I mean...his toes pointed into each other. Also his head tilted slightly to one side but we worked on that with exercises and it grew straighter. Obviously he had some pretty severe ortho problems from the get go. Now after the shoulder surgery no one ever said anything about his spine even though that is where they attached his shoulder...or scapula. He grew stronger after the surgery, he was four then. He got much better than they ever thought he would...he was defiant as we all know and showed them! He actually was able to do a push up at age 14 when they closed out his case and called him as done as he could be...about 90%. Well now we are 9 years from then and in the last 3 years or so it has been slowly getting worse again. If he tried to do anything hard, he was in dire pain. Last year it was so bad Tony tried to work him and he simply couldnt do it. He walks hunched over and a doctor actually found scoliosis on a film that we had never been told about. He cannot bend over and touch his toes. His back is fused. He is in pain ever day and cries during the night. I had been trying to remember the doctor's name at Duke that did his surgery and just lucked upon it one day while searching the internet. We called them. He isnt doing spines or shoulders anymore but transferred us to a guy who is doing shoulders. We went there yesterday. They acted like they didnt even believe Cory had surgery there! Said they couldnt find his records, hemmed and hawwed over what they were seeing, said it was something they had never seen before...ohhh...haaaa...hmmmm. I mean you cannot fake a shoulder that will not stay in place and wont raise over his head. It is so obvious. His bones are clear. He is so thin you can see them through his skin. He is in so much pain but they say...oh...do PT and take some tylenol...that will help. Cory is ready to either shoot himself or someone else. Duke was really his last big hope. If the place that did his surgery...the place that should surely believe him didnt....what hope does he have? Where can I take him? Who do I turn to next?