tomorrow is her ultrasound. There is a place here that does them where you do not have to drink all that liquid to have it. Her visiting nurse from WIC called today- it is weird, WIC told us the nurse was scheduled for a date in July, but then wrote on our paperwork thta date in JUNE. and well, noone came or called on the June date, so we assumed OK they simply wrote it wrong on our paperwork, but it would be July as we were told. Nope- today nurse calle dand tried to say the appointment is for this week, um nope. she argued with me, and also did not want to talk to me. I understand her not wanting to talk to me, but I told her anyway that nope, easy child is sick and could not come to phone, which was true. So the nurse began to yell at me that she HAD to talk to easy child NOW. I said easy child was too ill and cannot come to phone, cuz it was true and easy child was finally resting.she wakes even in the nite to be ill.and is once again going downhill. So I had to keep saying no, easy child is too ill to come to phone and nurse kept yelling saying no, she HAS to talk to easy child NOW....finally she said if easy child is ill, I need to take her to the doctor, I said yes, we did, and she also goes back again tomorrow. Nurse got weird, now nurse did not even ask what type of ill is easy child...but then she decided well, I dunno what she decided but she began to chant at me that easy child needs to see her doctor. Well DUH, but, how would the nurse know, she has never met easy child and she has never talked to easy child and she never asked what type of ill easy child is.... This is all getting so extremely frustrating. and at wic, I was assigned proxy statuus by easy child in the office at her first visit.....altho, it seems it does not matter, this woman- the nurse refused to identify herself to me or state her business, I only knew she was the visiting nurse becuz of caller id on the phone. I was on phone thinking how idiotic it was I was on phone with "PCs visiting nurse" telling the nurse easy child is quite ill and in and out of hospital etc, and the visiting nurse is chooseing to be so .....well, I am not sure of the word. Not one iota of concern about easy child or her type of illness....just wants to yell at me saying easy child should go to doctor.....well, yeesh, I told her easy child had been admitted to hospital, and the doctor SAW her and will see her again tomorrow..... Yes, I have copies of the medical POA and release of information to take with me everywhere tomorrow- to WIC, to docs etc.altho they do all already have copies from our first visits. They have done me zero good so far, so I doubt they will do me any good ever....and with easy child once again declining.....gosh I had been so hopeful, she did so good the 24-36 hours post hospital admission. She is keeping ALL the medications on board as Rx'ed.....and she is dutifully drinking what she has been ordered to drink etc and when she was ordered etc.....It has to be awful to wake up in middle of nite just to throw up. She is listless already again, just laying, not answering much, refuseing phone refuseing boyfriend visits etc.....but I do not know how else to get it thru any of her medical professionals heads......she is THAT ill, yes, still, ongoing..... So how wonderful, we have a NEW medical person added to her "team" who seems to be to be every bit as useless as her doctor, and our hospital etc. This nurse just refused to accept there is a gray area where a person CAN be ill enough to not be able to jump and come to phone etc right this second, but not ill enough to be inpatient (per ER) and where a doctor is not .I dunno- being more proactive? Well, I am SORRY but.........yes, easy child is not talking, not moving, YES she has been to ER and to docs and been inpatient and discharged and this is how she has been at every one of those places. If the visiting nurse does not like it she can stand in line behind me about not liking it, but...I can hand her ALL the paperwork, discharge papers from the several ER visits and inpatient stint, and I can give her copies the doctor wrote for work etc to confirm doctor HAS seen her, but, seems to me it would be more 'nursey" if she would ADVOCATE WITH me for easy child instead of useing the time and energy to argue with me or accuse me or blame me or act like I am simply standing in way between her patient and her or whatever. Well, and then it turned out, I think she was calling to CANCEL visiting easy child......LOL, Okay then......how weird. EVERYTHING is just so weird. I just continue to stand here looking at all of this and wondering what in the world is going on? If I EVER treated one of my patients this way, I would expect to be held accountable...reprimanded formally....and if as a parent I treated a child of mine this way, I would be in trouble with CPS...... SO here I am with a freshly turned 18 year old who previously was NOT ill who is very very newly preg and so sick it is not funny......with docs and nurses alternateing between thinking we are being hypochondriacs and then finally relenting and seeing her and then blaming me becuz she went without medical attention, nevermind thats not MY fault, it is theirs cuz I DID call and try to get it into their heads how sick she is......BUT becuz it is 4 docs rotating and each doctor has their own nurse in the docs office....and the require each patient to rotate thru with ALL 4 docs.there is no continuity.....so we are dealing with this ove rand over and over and over. Becuz it seems noone at docs office can be bothered to OPEN PCs chart when we DO call. So much so that even when I said the ER paperwork was in the chart, they said no and argued and then opened the chart and found that YES it WAS.........Only AFTER chiding me and telling me no, I could NOT have had her at ER....that ER would not have discharged her this way.....and darned ER..grrr........telling me her doctor NEEDS to SEE her, that they are "only ER" and NOT for long term or chronic issues and being in ER this many times in so short of time for the same problem is long term chronic. <sigh> I wonder what the ultrasound will show? Is the baby weathering thru all this lunacy? I wonder how much we will know at the ultrasound appointment. I know if it is "bad" they will not tell us..... (well, thats been MY experience, anyway- but who knows now?) SO- wish us luck and send good thoughts. This all is really getting "old" and as crazy as all this is going, parenteral feeding makes me nervous, too- I KNOW they will find some way to make THAT be all complicated and weird, too.