My sister in law just called. My great nephew (my nieces son) has the gene for Adrenal Luekodystropy. It's a devastating disease-I've posted about it before. The disease has started to progress. If they don't find a bone marrow donor to slow down the progress of the disease then he will be blind withing two years and won't live long after that. My nephew died from this (my niece's brother) when he was 11. This little guy won't make it that long without a donor. Members of husband's family have suffered so much from this. Two of husband's brothers died from this. At least three of my great nephews are carrying the gene.
Please say a prayer. Thanks.
Please say a prayer. Thanks.