Just keep swimming
New Member
Hi family,
Been a while since I last posted, we have all been down with colds/flu etc. Now I have it, NOT FUN!
Anyways, as you know we have recently moved to a new county, so this means getting established with all new docs. So far, Aly is set with a wonderful pediatrician, has an appointment for her initial visit with a urologist next week and a new psychiatrist in medication December. She now has 2 new Tdocs, who see her weekly at least at school and/or home.
In preparation of her pediatrician visit last week, I copied all the records I have, both medically and educationally. This got me looking closer at all her records and going over the first educational testing she had when she was 6 and the updated testing done last spring.
Not sure why I didn't notice this before now but her test scores have actually gone DOWN since the first testing. She is still reading at about 1st grade level, but math is actually down to pre-K level.
The new school psychologist called me this morning and set up a follow up IEP meeting, she has done some further testing on her social emotional levels. She is greatly concerned because she sees an extremely anxious child that is not anywhere near her same age peers for social emotional skills. DUH!! I coulda told her that!! Anyways, she is wanting us all to rethink Aly's placement for this year. Her being mainstreamed is not working at all, she is just too anxious and not able to comprehend what the rest of the class is doing. She is now acting out in her resource class room as well.
And, the "tutoring" she was doing with a little girl with Down's Syndrome is not working any longer as Aly is not able to read even the 1st grade level books they were having her read to this little girl.
Has anyone ever heard of any disorders where the brain actually deteriorates? Could this be caused from her medications? I mean, in basically 6 years of school she has hardly gained anything educationally or socially, she is actually doing worse.
Her pediatrician is having Aly evaluated by a new Urologist as Aly is now becoming urine incontinent, and bed wetting as well. She wants her to have a thorough evaluation by her previous neurologist ASAP. She wants the new psychiatrist to carefully look at Aly's medications and see if there is any correlation (sp?) between her obvious backsliding and her medications.
I am worried. I am scared. I am frustrated!
Oh, and Aly said the tdocs are not coming to see her at school, although they report they have seen her at least once usually twice weekly since the start of school. Aly swears to me that she does not remember talking with them, although they have reported to me that they have and have verified a few things that she has told them. Could she possibly just be shutting them out?
Again, I am so scared for her.
Thanks for listening!
Vickie
Been a while since I last posted, we have all been down with colds/flu etc. Now I have it, NOT FUN!
Anyways, as you know we have recently moved to a new county, so this means getting established with all new docs. So far, Aly is set with a wonderful pediatrician, has an appointment for her initial visit with a urologist next week and a new psychiatrist in medication December. She now has 2 new Tdocs, who see her weekly at least at school and/or home.
In preparation of her pediatrician visit last week, I copied all the records I have, both medically and educationally. This got me looking closer at all her records and going over the first educational testing she had when she was 6 and the updated testing done last spring.
Not sure why I didn't notice this before now but her test scores have actually gone DOWN since the first testing. She is still reading at about 1st grade level, but math is actually down to pre-K level.
The new school psychologist called me this morning and set up a follow up IEP meeting, she has done some further testing on her social emotional levels. She is greatly concerned because she sees an extremely anxious child that is not anywhere near her same age peers for social emotional skills. DUH!! I coulda told her that!! Anyways, she is wanting us all to rethink Aly's placement for this year. Her being mainstreamed is not working at all, she is just too anxious and not able to comprehend what the rest of the class is doing. She is now acting out in her resource class room as well.
And, the "tutoring" she was doing with a little girl with Down's Syndrome is not working any longer as Aly is not able to read even the 1st grade level books they were having her read to this little girl.
Has anyone ever heard of any disorders where the brain actually deteriorates? Could this be caused from her medications? I mean, in basically 6 years of school she has hardly gained anything educationally or socially, she is actually doing worse.
Her pediatrician is having Aly evaluated by a new Urologist as Aly is now becoming urine incontinent, and bed wetting as well. She wants her to have a thorough evaluation by her previous neurologist ASAP. She wants the new psychiatrist to carefully look at Aly's medications and see if there is any correlation (sp?) between her obvious backsliding and her medications.
I am worried. I am scared. I am frustrated!
Oh, and Aly said the tdocs are not coming to see her at school, although they report they have seen her at least once usually twice weekly since the start of school. Aly swears to me that she does not remember talking with them, although they have reported to me that they have and have verified a few things that she has told them. Could she possibly just be shutting them out?
Again, I am so scared for her.
Thanks for listening!
Vickie