Got the letter today that difficult child 1 has been denied for SSI. "The medical records do not show marked and severe functional limitations." This is a kid that won't remember to eat unless I make him (only 70 lbs at the age of 14), can't be left home unsupervised (don't get me started), doesn't think to shower unless I tell him to, can't cook anything because he forgets he's cooking (have the burn holes & ruined appliances to prove it), ........... How do I get them to see that without me home, this kid would be off his medications and eventually die of starvation because he has VERY marked functional limitations, not to mention the legal and school issues we've had? The only reason he's not doing worse is because I am home 24/7 to make sure he gets everything he needs. A lot of this stuff probably isn't in his medical records since the only GOOD professionals we've found are the neuropsychologist he will be seeing every two years for a re-evaluation and an Occupational Therapist (OT) that no longer works with kids. The others were/are idiots and I'm sure their notes are very minimal but they are all we have access to. Any ideas on how to get this decision turned around or should I not even bother to appeal it?