I got a call a half hour ago (9:30 am) that Jessie's MRI results are already in. The pediatrician. Dr. W, called me to say that the pediatrician neuro had already read the MRI.
There is "nothing wrong" with her brain. They conclude it is anxiety.
Dr. W was very adamant that it is NOT "all in her head" or something she made up. It is real.
Then she said that there is an abnormality in the pituitary gland. The neuro didn't think it was a big deal but he and Dr. W want her to see a pediatric endocrinologist right away.
They said we COULD call the university pediatrician endocrinologist clinic but it would take "months and months and then we would see a rotation of students and interns and it just would take longer than they wanted it to.
I was told specifically what to say to get the pediatrician endocrin to get in ASAP.
I have several questions here. First I DID call to verify the MRI had been read. Since the Dr tried to tell me the results before the MRI was done I wanted to make sure we were not being given the wrong info. It was read this morning.
Usually they send a letter if things are normal. So why the rush and the coaching to get us into the pediatrician neuro? Why didn't the doctor make the appointment the way they usually do?
Makes me go hmmmmm.
If this IS anxiety based, how do we treat it?
From looking into the keppra she takes for epilepsy I see a lot of patients with anxiety problems that they think are keppra based.
Could the keppra be contributing? Or the switch to generic keppra be part of the problem?
Neuro thought keppra was a strange and illogical choice for treating her epilepsy. He said he would want to change it after blood work andthe MRI if all was okay with them.
I called and left a message for neuro asking him to let us know how to switch and what medication to choose for the epilepsy.
He is out until Monday so we will see what he says.
The endocrin doctor is out until Monday so I will schedule that then.
Sigh.
The story continues.
Meanwhile, the lorazepam helps a little bit.
There is "nothing wrong" with her brain. They conclude it is anxiety.
Dr. W was very adamant that it is NOT "all in her head" or something she made up. It is real.
Then she said that there is an abnormality in the pituitary gland. The neuro didn't think it was a big deal but he and Dr. W want her to see a pediatric endocrinologist right away.
They said we COULD call the university pediatrician endocrinologist clinic but it would take "months and months and then we would see a rotation of students and interns and it just would take longer than they wanted it to.
I was told specifically what to say to get the pediatrician endocrin to get in ASAP.
I have several questions here. First I DID call to verify the MRI had been read. Since the Dr tried to tell me the results before the MRI was done I wanted to make sure we were not being given the wrong info. It was read this morning.
Usually they send a letter if things are normal. So why the rush and the coaching to get us into the pediatrician neuro? Why didn't the doctor make the appointment the way they usually do?
Makes me go hmmmmm.
If this IS anxiety based, how do we treat it?
From looking into the keppra she takes for epilepsy I see a lot of patients with anxiety problems that they think are keppra based.
Could the keppra be contributing? Or the switch to generic keppra be part of the problem?
Neuro thought keppra was a strange and illogical choice for treating her epilepsy. He said he would want to change it after blood work andthe MRI if all was okay with them.
I called and left a message for neuro asking him to let us know how to switch and what medication to choose for the epilepsy.
He is out until Monday so we will see what he says.
The endocrin doctor is out until Monday so I will schedule that then.
Sigh.
The story continues.
Meanwhile, the lorazepam helps a little bit.