Papelledema...anyone heard of THIS?

Discussion in 'The Watercooler' started by MidwestMom, Dec 21, 2010.

  1. SomewhereOutThere

    SomewhereOutThere Well-Known Member

    That's my daughter's SO's new diagnosis. He has been unable to work for a month and both are getting scared, plus SO just feels so horrible all the time and is in so much pain. It's a rare disorder often linked to other things. If anyone as any first hand experience with this, please post!

    Thanks in advance.
  2. busywend

    busywend Well-Known Member Staff Member

    Never heard of it, but sounds awful!

    Could it be from a medication? The other causes of this sound serious!
  3. Mattsmom277

    Mattsmom277 Active Member

    I never heard of this either. Well I have heard of pressure etc causing optic nerve issues and vision loss etc. But never this term etc. What kind of tests are they doing at this point? I will be saying prayers for this young man. How he is coping?
  4. SomewhereOutThere

    SomewhereOutThere Well-Known Member

    They have done a CAT scan, an MRI (both normal) and now an MRA (an MRI with dye injected into it). Then they sent him to a Neurologist. They are is very rare. And can be very serious. And I am very worried for both him AND my daughter, who is really doing well so far, but...
  5. susiestar

    susiestar Roll With It

    I hope that whatever is going on, it is found quickly and can be cured even faster.