Susiestar

[everywoman]

I saw something on the news---in fact, it's on right now. It's about a young boy with a disease called Dystonia.
http://www.ninds.nih.gov/disorders/dystonias/detail_dystonias.htm
It reminded me of Jess. The young boys symptoms were eerily similar to what you describe is going on with her.
It may be worth looking into.
The boy had deep brain stimulation---similar to the procedure they do for Parkinsons and is now playing soccer again.

 

[susiestar]

Thank you MUCHLY!! This does sound like something I need to look into. I will ask our neurologist about it. IF he doesn't give a satisfactory answer then I will ask another neurologist or 3.

I do hope it isn't this. I really do. But if it is, then we will get it treated as best it can be.