Hanging-On
New Member
Before I tell the story of our office visit, The new Dr. gave me a coupon for 1-month FREE Abilify. Not the same, but better than nothing. He said, lets get through this month and we'll see what we can do next month. Good News....yeah, finally someone working with me. Happy Dance... :princess:
Now about the visit with difficult child's new Psychiatrist. The hospital failed to send ANY records on difficult child, and he saw that I had 2 HUGE binders of records, and asked if I had anything from the hospital. I opened one of the binders up, and said, "they're indexed, read what you need". The first thing he said & kept saying is, "this is unbelievable!!!!". "Man the system is realy broken!!" He asked why we're seeing him now, when difficult child got out 1/6/07? I said to ask his people. They said this is your first available appointment. Once again, "UNBELIEVABLE!!" Then I go and tell him that difficult child went from Acute, to a Residential Treatment Center (RTC), and back to Acute, and then dumped out here to me with NO services in place and NO schooling in place with a functional IEP, NOTHING. (I think we all know what the dr is about to say....."UNBELIEVABLE"!)
Well during our ENTIRE visit difficult child was at his worst. Truly, I haven't seen him this bad since the Intake visit at the hospital. difficult child regressed to a toddler, about 1-2 yrs old. I told the dr. that the hospital observed that when he's under stress difficult child reverts to the age of a toddler. They didn't explain how or why, but that's what they saw. difficult child then used the excuse twice about having to use the restroom, just to leave the room. Then he turned non-verbal (like he use to) and only made sounds. Mostly "ughhh" to answer any questions from the dr. He was TOTALLY out of control, nonverbal, non-communicive, aggressive, trying to leave the room (to where we moved part of the couch to keep him in the room), rummaging through the dr's desk (when he wasn't looking), opening up all different games and toys & moving up to another (absolutely ZERO attention span), taking off his boots, kicked me once, tried to bite me, and hit me with a pillow. (The last three I'm certain was to test the dr to see what he'd do. The dr. agreed with me). I was constantly moving trying to hold him down, block him from leaving, stop him from moving the couch (which is now blocking the door), picking up game pieces, stopping him from taking pictures off the wall, stopping him from pocketing some type of toy he liked, trying to keep him dressed, etc, etc, etc. At one point the dr. asked me why I'm there, and I almost started to cry (but held back the tears, but the dr. could see), and I pointed at difficult child and said "THIS IS WHY!!". I think he had to ask that, even though it was totally obvious why we were there. At one point when we got to the point of moving the couch to block the door, he then picked up his cell phone and called his other office and asked for a "Case Worker". He said YOU need a Crisis Case Worker NOW, not out patient counseling. He spoke to someone there, and we have an appointment TODAY in three hours. They asked if we had Medicaid, and I said "I'm trying but I'm always turned down". He said they'd also help with that. He talked to her about home services and other stuff I really didn't hear because I was dealing with difficult child. At the end of the hour, I then ask the obvous question, "So, what's your diagnosis?" He said, "Well you have your hands full. But I think with our help, and training, proper medications he can grow up to be a functioning educated person. He's a good looking boy, he has abilities, we just have to help him so that he can get back into school. There's alot of hope. That my most oppitimistic view point." Then the dr. walked us out, canceled all difficult child's appointments with the out patient counselor and said I was transfering to his other practice which is crisis oriented. Oh, when we walked out of the building, difficult child completely turned back into a 7 yr old. The most bizzar thing I've ever seen.
[<span style="color: #3366FF"><span style="color: #3366FF">OMG Ya'll, I'm in tears. I can't believe that someone actually is looking at this and doing something to help. Instead of running the other way.</span> </span>Everyone else seems either terrified by difficult child and his disabilities, and figure "why try?", or they just don't seem to care and want to sweep him under the rug out of sight. I'm so glad it's lunch time, and the office is empty. I don't want to have to explain that my tears are due to "hope", and not dispair, for the first time in a long time.
Now about the visit with difficult child's new Psychiatrist. The hospital failed to send ANY records on difficult child, and he saw that I had 2 HUGE binders of records, and asked if I had anything from the hospital. I opened one of the binders up, and said, "they're indexed, read what you need". The first thing he said & kept saying is, "this is unbelievable!!!!". "Man the system is realy broken!!" He asked why we're seeing him now, when difficult child got out 1/6/07? I said to ask his people. They said this is your first available appointment. Once again, "UNBELIEVABLE!!" Then I go and tell him that difficult child went from Acute, to a Residential Treatment Center (RTC), and back to Acute, and then dumped out here to me with NO services in place and NO schooling in place with a functional IEP, NOTHING. (I think we all know what the dr is about to say....."UNBELIEVABLE"!)
Well during our ENTIRE visit difficult child was at his worst. Truly, I haven't seen him this bad since the Intake visit at the hospital. difficult child regressed to a toddler, about 1-2 yrs old. I told the dr. that the hospital observed that when he's under stress difficult child reverts to the age of a toddler. They didn't explain how or why, but that's what they saw. difficult child then used the excuse twice about having to use the restroom, just to leave the room. Then he turned non-verbal (like he use to) and only made sounds. Mostly "ughhh" to answer any questions from the dr. He was TOTALLY out of control, nonverbal, non-communicive, aggressive, trying to leave the room (to where we moved part of the couch to keep him in the room), rummaging through the dr's desk (when he wasn't looking), opening up all different games and toys & moving up to another (absolutely ZERO attention span), taking off his boots, kicked me once, tried to bite me, and hit me with a pillow. (The last three I'm certain was to test the dr to see what he'd do. The dr. agreed with me). I was constantly moving trying to hold him down, block him from leaving, stop him from moving the couch (which is now blocking the door), picking up game pieces, stopping him from taking pictures off the wall, stopping him from pocketing some type of toy he liked, trying to keep him dressed, etc, etc, etc. At one point the dr. asked me why I'm there, and I almost started to cry (but held back the tears, but the dr. could see), and I pointed at difficult child and said "THIS IS WHY!!". I think he had to ask that, even though it was totally obvious why we were there. At one point when we got to the point of moving the couch to block the door, he then picked up his cell phone and called his other office and asked for a "Case Worker". He said YOU need a Crisis Case Worker NOW, not out patient counseling. He spoke to someone there, and we have an appointment TODAY in three hours. They asked if we had Medicaid, and I said "I'm trying but I'm always turned down". He said they'd also help with that. He talked to her about home services and other stuff I really didn't hear because I was dealing with difficult child. At the end of the hour, I then ask the obvous question, "So, what's your diagnosis?" He said, "Well you have your hands full. But I think with our help, and training, proper medications he can grow up to be a functioning educated person. He's a good looking boy, he has abilities, we just have to help him so that he can get back into school. There's alot of hope. That my most oppitimistic view point." Then the dr. walked us out, canceled all difficult child's appointments with the out patient counselor and said I was transfering to his other practice which is crisis oriented. Oh, when we walked out of the building, difficult child completely turned back into a 7 yr old. The most bizzar thing I've ever seen.
[<span style="color: #3366FF"><span style="color: #3366FF">OMG Ya'll, I'm in tears. I can't believe that someone actually is looking at this and doing something to help. Instead of running the other way.</span> </span>Everyone else seems either terrified by difficult child and his disabilities, and figure "why try?", or they just don't seem to care and want to sweep him under the rug out of sight. I'm so glad it's lunch time, and the office is empty. I don't want to have to explain that my tears are due to "hope", and not dispair, for the first time in a long time.
