harmonious4967
New Member
My grandaughter is 20ths old and has bee diagnosed with optic nerve hypoplasia we have had a MRI and has a small brain and some fluid and small optic nerves. She was really small at birth 4lbs3oz and 17' long. She is very bright and talking exceptionally early and is close to walking. She has some vision but very low but I think little or nothing straight ahead of her. She looks down all the time and you have to ask her to look up. She is very bright and active. The optomologist says come every 6 mths and there can be some improvement up to 5-8 yrs of age, around 3-4 yrs of age she will be better able to express what she is seeing. I want to know if there is anything outside of the box of modern medicine that we could be doing to help her. I love this child and it breaks my heart to see other children of the same age and I want to know everything possible that I could be doing to help her