Hi guys,they called this morning and I was actually asleep! holy cow really a dead sleep. (didn'thappen till 3 but that was 4.5 hours, wow)
JJJ, sorry, I wasn't clear, My job right now is Parent Caregiver to difficult child thru his MA waiver. Only one place can be paid at a time. If he is in the hospital or with Integrated Listening Systems (ILS) or anything that ma pays, I can't be paid because it is double billing.
the reason teh docs told me only a few days is because of the half life of the medication. they just want it out of him. I am of course willing for him to stay longer if they feel there is a reason that he needs to be there. It was such a dramatic difference, these behaviors, that of course we are hoping once the medications are out then he will be my difficult child again, not an easy kid but not an impossible kid. I am afraid now that he saw he could really muscle me, no matter why, he may try it again. But he is sitting in his room there (they asked, can he play with the other kids without a 1 on 1...I said, sure you TRY that, but you can't blame him when things go wrong because he just doesn't have the skills to interact appropriately and if those kids are already on edge, Lord help everyone.
In the past if he is in the hospital it is such a picnic for him. He is not my child (never a psychiatric hospital, but for the brain injury, seizures etc.). they gave me his game boy (we used it just to help with transition and they were good with that) and he was pretty shocked he was not going to get to play games all day. But OMG the groups they want him to go to...THAT should be interesting. He will tell them everything is because of penis, poop, boobs, and other baby words....
Luckily they showed me around and there is a GYM...I put my biggest emphasis on that area. HE can't be mainstreammed OR in Special Education gym with other kids. We try and try and the district who says "we dont do 1 on 1 DAPE put him in 1 on 1 DAPE! Whatever little control IS left, he loses when doing gross motor things. He LOVEs it but it is just random play, no following rules and such. They said they like to play dodge ball, that is an assult charge waiting to happen. He can't remember rules and he throws too hard and he will target one kid who laughs or whatever...ug...I hope they believe me. (Not to mention SIDES??? he just doesn't get the whole staying on a side thing).
IC, you know what, his public health nurse told me the county has an emergency fund for things sometimes and if I ever had to move to call her.....I have been on a waiting list for middle income housing for a LONG time. (Do you guys have that, not section 8 but for people who dont qualify for section 8 I think for a family of two it goes from my sad income to up to even like 60 thousand...crazy if I made 60 thousand, I would feel so rich, even in my best employment ever I never came close to that)
I will call and leave a msg. so she calls me back. His 500 adoption assistance continues though, he actually has to be moved out of my care for that. So, we will see. Crazy thing is I had to put more difficult child hours in for this than normal difficult child hours. This certainly is something above and beyond normal parenting which is what I get paid for... anything related to his disability. YIKES. Please GOD
THEY have called twice asking if his concerta dose is REAL. the docs did not want to give it! I said if you dont, you will pay. I reminded them again and again about the exact nature of his enzyme disorder.... They seem really nice and he is being his cute self (no medication last night! ) so I am glad the er saw him spitting mucous at me and threatening me....