I am new to this, just signed up today. Not sure of all the abbreviations so let me try. My child is now 14 have had encopresis for 8 years. We have been to too many Dr to count. There has been so many guesses I cant list.
Was told he was ADHD & on concerta and helping ADHD only. We were told that he would grow out of it. He was put on stool softeners & enemas to "clean" him out.
He will deign that it is there, state that all you are doing is trying to embarrass him, or my personal favorite that I planted the BM in his pants to justify yelling. He hides the soiled pants, leaves them on the floor, piles them up, hides them in other peoples clothes, or just wears them. It is everyone elses fault. He is innocent. We were told that when he was interested in girls it would stop. He has "girlfriends" that understand him and as one put it her mother works in a nursing home so she is use to it. He is in high school and today at Dr. appointment. told me that I only have to put up with it for 3 more years. Our house smells worse than an outhouse. I am constantly finding more. He will even hide food in his bathroom with soiled underwear in a bag next to it. He stained the toilet due to him actually going in it and not flushing. Had to scrub and soaked it with bleach while gone for a week. When the little balls roll out of his pants he just grinds them into the floor. He swears that no one knows but us yet his friends are asking why he smells, they are just kidding is his comment.
He also wets his bed at night. The urologist stated that due to him holding it for so long the only time that his muscles relax is when he is asleep. He will wear his underwear for them to dry. He leaves his sheets to dry and will sleep on them again unless you catch it. We got a bell and pad to alarm when he wets. He unplugs it or moves it under his pillows so it won't wake him up.
He doesn't like friends to come over because the youngest might rat on him. He says that he is embarrassed but does nothing. He claims that he doesn't know when he does it, yet can tell you when and where he did. He told the DR he couldn't feel anything. Was tested by a neurologist and all muscles are normal. Even admitted he can feel it. Every DR states that there is nothing physically wrong with him. It is either an attention or controlling issue.
We have tried to ignore it and the smell gets so bad that it can knock you out. If we are not careful and run bleach in-between his clothes in the washer others get sick.
For years the DR have told him to retrain his muscles every time he promises to he doesn't try. He will lie about pretty much everything and then get mad when he isn't believed.
He will stand there with full pants ,where there is no doubt, and tell you he is clean and even when he sees it he will dismiss it.
We have tried to reward him, he will do better to get the reward and then go back to doing it. When in depends due to goodnights dont fit anymore he not only soils but wets on himself because as he puts it why does it matter. We buy, one time use underwear, he will not throw them away. Have even went without and it rolls on the floor.
I have realized that he will not stop unless he wants to yet have no clue as to when or what will cause that. We are at the end of our rope and have talked about school or special programs. Looked into military school but he will be expelled and forfeit tuition if he does it there. Residential programs are around $3500/mo pulse therapy, and an institution wont help it would just hinder. Nothing is helping or working.
Was told he was ADHD & on concerta and helping ADHD only. We were told that he would grow out of it. He was put on stool softeners & enemas to "clean" him out.
He will deign that it is there, state that all you are doing is trying to embarrass him, or my personal favorite that I planted the BM in his pants to justify yelling. He hides the soiled pants, leaves them on the floor, piles them up, hides them in other peoples clothes, or just wears them. It is everyone elses fault. He is innocent. We were told that when he was interested in girls it would stop. He has "girlfriends" that understand him and as one put it her mother works in a nursing home so she is use to it. He is in high school and today at Dr. appointment. told me that I only have to put up with it for 3 more years. Our house smells worse than an outhouse. I am constantly finding more. He will even hide food in his bathroom with soiled underwear in a bag next to it. He stained the toilet due to him actually going in it and not flushing. Had to scrub and soaked it with bleach while gone for a week. When the little balls roll out of his pants he just grinds them into the floor. He swears that no one knows but us yet his friends are asking why he smells, they are just kidding is his comment.
He also wets his bed at night. The urologist stated that due to him holding it for so long the only time that his muscles relax is when he is asleep. He will wear his underwear for them to dry. He leaves his sheets to dry and will sleep on them again unless you catch it. We got a bell and pad to alarm when he wets. He unplugs it or moves it under his pillows so it won't wake him up.
He doesn't like friends to come over because the youngest might rat on him. He says that he is embarrassed but does nothing. He claims that he doesn't know when he does it, yet can tell you when and where he did. He told the DR he couldn't feel anything. Was tested by a neurologist and all muscles are normal. Even admitted he can feel it. Every DR states that there is nothing physically wrong with him. It is either an attention or controlling issue.
We have tried to ignore it and the smell gets so bad that it can knock you out. If we are not careful and run bleach in-between his clothes in the washer others get sick.
For years the DR have told him to retrain his muscles every time he promises to he doesn't try. He will lie about pretty much everything and then get mad when he isn't believed.
He will stand there with full pants ,where there is no doubt, and tell you he is clean and even when he sees it he will dismiss it.
We have tried to reward him, he will do better to get the reward and then go back to doing it. When in depends due to goodnights dont fit anymore he not only soils but wets on himself because as he puts it why does it matter. We buy, one time use underwear, he will not throw them away. Have even went without and it rolls on the floor.
I have realized that he will not stop unless he wants to yet have no clue as to when or what will cause that. We are at the end of our rope and have talked about school or special programs. Looked into military school but he will be expelled and forfeit tuition if he does it there. Residential programs are around $3500/mo pulse therapy, and an institution wont help it would just hinder. Nothing is helping or working.