As many of you know, I've been on a long term treatment of prednisone. It's been a rough almost 10 months. The Mayo docs are titrating me down very slowly as the last time we tried to lower the prednisone dose my body didn't tolerate it - just got sicker. I'm finding this time to be challenging as well. While I have some good days, the bad days are worse than ever. The pain & agitation are extreme, blood pressure shoots up along with pretty severe edema. I guess my question is have any of you been on a long term treatment of steroids & how did you tolerate coming off of them? What was a successful method for you? I've been told that my body needs to be fooled into believing it doesn't need this medication anymore so we can introduce a non-steroidal anti auto-immune medication. Looking for any suggestions - looking really for a positive outcome. Let's just say this isn't fun.