as I have not been given an appointment. The triage doctors appear to agree with the diagnosis of Susac's Sydrome however they feel that there are no further tests or treatments that can be done at Mayo that couldn't be done here. In a way, I'm relieved not to have to travel for treatment. I'm pretty sure that my neuro doctor will follow through with the treatment guidelines for this syndrome - if not, it's time to find a new neuro doctor. Feeling a tad frustrated this morning - have a diagnosis; now need someone to treat it. A good friend of mine is going to help me through this mess as I have a few cognitive/memory issues. Help me with research, review of letters I've written, etc. Some days I feel like such a child - I can't for the life of me remember how to do something or how to get from one place to the next. It's a tad frightening. Other days I feel like my old self except for the weakness & the balance issues. Okay, I believe I'm done whining for the day - thanks for listening.