flutterby
Fly away!
She had told me before that she wouldn't do it unless my cardiologist said it was ok...and she was hesitant about that.
I saw her today. I haven't done the 24 hour urine for the Cushing's test because right after I saw the endocrinologist I had a severe kidney infection. Then because of the antibiotics I had a bad yeast infection that didn't want to go away. And I told my doctor that it would probably be better for me to do the test when I'm up for more than 5 hours a day. Especially because after the urine test, I have to do a dexa-something suppression test, where I take a pill at 11pm and have blood drawn at 8am. The time is very precise, so I would have to be awake at both of those times. And I just cannot get out of bed.
She asked me if we had talked about a sleep study. I told her we had talked about it. I don't feel one way or the other about it. I tend to think it's not something that a sleep study is going to help. I've been running a low grade fever constantly for about 2-3 months now.
So, she told me to do the Cushing's test and then she would talk to my cardiologist about putting me on a stimulant to give me some energy (I've been asking for this for months). I told her I hadn't seen him for a while and she said I would probably want to get in touch with him. I don't want to see him, but I suppose I will. I'm tired of doctors. Really tired of them. If nothing comes of the Cushing's test, I'm done looking for answers. Eventually something will happen that they can't deny and we'll go from there.
I told her, FWIW, that I don't have any permanent heart damage from the heart attack. That the echo I had done right after, and subsequent heart caths, showed my heart working efficiently. And I'm having no heart issues now - and haven't.
I'm going to *try* to stay awake tomorrow to do the 24 hour urine and then do the dexa-something suppression test Thursday night. I have to be at difficult child 2's meeting at 10am on Friday anyway. Then, we'll look at adding a stimulant it looks like. I'm kinda nervous about it, actually. Not knowing what it will feel like as I tend to be so sensitive to medications.
So that's that. The tendonitis in my right shoulder is bad again and I can't have a steroid shot til we know something about Cushing's. And my reflux is a lot worse and she doubled my medication. Fun and excitement.
But...did you know that phenegran is *really* good at headaches/migraines? I found that out by accident last night. Unforunately, phenegran makes me sleep.
You know...if I were a horse, they'd shoot me.
I saw her today. I haven't done the 24 hour urine for the Cushing's test because right after I saw the endocrinologist I had a severe kidney infection. Then because of the antibiotics I had a bad yeast infection that didn't want to go away. And I told my doctor that it would probably be better for me to do the test when I'm up for more than 5 hours a day. Especially because after the urine test, I have to do a dexa-something suppression test, where I take a pill at 11pm and have blood drawn at 8am. The time is very precise, so I would have to be awake at both of those times. And I just cannot get out of bed.
She asked me if we had talked about a sleep study. I told her we had talked about it. I don't feel one way or the other about it. I tend to think it's not something that a sleep study is going to help. I've been running a low grade fever constantly for about 2-3 months now.
So, she told me to do the Cushing's test and then she would talk to my cardiologist about putting me on a stimulant to give me some energy (I've been asking for this for months). I told her I hadn't seen him for a while and she said I would probably want to get in touch with him. I don't want to see him, but I suppose I will. I'm tired of doctors. Really tired of them. If nothing comes of the Cushing's test, I'm done looking for answers. Eventually something will happen that they can't deny and we'll go from there.
I told her, FWIW, that I don't have any permanent heart damage from the heart attack. That the echo I had done right after, and subsequent heart caths, showed my heart working efficiently. And I'm having no heart issues now - and haven't.
I'm going to *try* to stay awake tomorrow to do the 24 hour urine and then do the dexa-something suppression test Thursday night. I have to be at difficult child 2's meeting at 10am on Friday anyway. Then, we'll look at adding a stimulant it looks like. I'm kinda nervous about it, actually. Not knowing what it will feel like as I tend to be so sensitive to medications.
So that's that. The tendonitis in my right shoulder is bad again and I can't have a steroid shot til we know something about Cushing's. And my reflux is a lot worse and she doubled my medication. Fun and excitement.
But...did you know that phenegran is *really* good at headaches/migraines? I found that out by accident last night. Unforunately, phenegran makes me sleep.
You know...if I were a horse, they'd shoot me.