mom_in_training
New Member
My easy child son that is severely disabled asperated on May 5th. Tomorrow will be 10 days that he has been in the hospital. On the 5th I had fed him and about an hour later he started coughing profusedly and I called 911. His fingernails were turning blue and my exact words to him was OMG you sound like your drowning. He was taken to the local ER and then transferred to the childrens hospital in another county where all of his doctors are so I have been there everyday and just coming home to sleep. I'll tell ya with the price of gas is wiping me out so I have started taking the Metro Link train. I am limited as far as time by taking the train but its well worth it considering the stress of the freeway (Always a parking lot!!) and its allot cheaper then driving. He developed pneumonia mostly in his right lung from asperating but with respitory therapy and antibiotics he is now free from pneumonia. Now the doctors are talking G-Tube for feeding after getting the results from a swallowing study that were not all that. All of this happening to a boy that has enjoyed eating by mouth all of his life. Tomorrow (Tue) they will be doing a ph probe study to see if he has Reflux or Gerd. Its been a crazy week to say the least. On a good note though, I did talk to the Occupational Therapist that assessed my son with the swallowing study and she did say that there is a therapy that can aid in swallowing problems and that he just might be able to eat by mouth again depending on his progress. the new therapy is done with electrodes to build up the muscles in the esophagas. In my sons case his esophagas muscles are weak and this is preventing him from swallowing properly. I just learned of this therapy today and have yet to research it. While all of this is going on my difficult child decided that she just has to go visit her homeless boyfriend and dogs me on Fri and I have not seen her since. She has allot of growing up to do. Strange that she wants to live like a homeless person part time but then have a nice home to come back to at her convenience, Hmmmmm? Not gonna work out as far as I am concerned. She cannot have her cake and eat it too. She definitely needs to learn that life is not all about having and doing things at her convenience especially when she has responsibilities that she needs to be focused on. Shes a joke.....