Re: Financial planning for/with special needs children (USA)

[EastCoastChris]

Very interesting Bess. We have some arrangements made for our sons but didn't really think about what would happen if he is considered disabled and would be on SSI.
It is enough to make my stomach do flip flops.

Hopefully,one of the parents will be around to care for him if he needs it but I tend to hope for the best and plan for the worst.
I will bookmark this site and show it to husband and our attorney.

Thanks again, for the info and url.

 

[The_Arc]

Going through this now.

Does anyone know who to talk to about SSI that REALLY knows what this in's and outs are?

My questions are this......If I file for SSI for my son age 11, and say in 3 years my son is just dandy then SSI doesn't ask ME to pay for the monies back.....but what about when my son is older? Can this boomerang and ruin his income?

If SSI is gotten and he's in the Residential Treatment Center (RTC) I've been told that out of $400.00 per month $30.00 of this per month goes into an account for me - for gas to come and see him- (I'm thinking 2 1/2 hour ride one way on $30.00 - yeah right in an SUV - okay)

So what good does it do? If he comes home and is rec. SSI, but Mental Health says "Now you make too much money and we'll charge you" Where have I benefited?

Would anyone recommend just letting sleeping dogs lie?

Thanks
Star

 

Star,
you are really gonna have to talk to a professional about this. I don't think either you or your son would have to pay back any monies he receives while he's disabled. But if he were to become "not-disabled", then you'd/he'd have to pay the monies back just for that period of time (if he received monies when he's not disabled). How would they determine that place/time? who knows...doctor's reports?

Here are some additional urls:

Benefits For Children With Disabilities http://www.ssa.gov/pubs/10026.html

What You Need To Know When You Get Disability Benefits http://www.ssa.gov/pubs/10153.html

If Your Condition Changes http://www.ssa.gov/pubs/10153.html#change

 

[EastCoastChris]

Thanks so much Bess, I am going to archive this for future reference.