The trip is off. I rec'd a call from both the rheum doctor & the neuro doctor today. It appears my sed rate is sky high once again; another round of steroids for a month. Another month of compromised immune system risk. No hospitalization required at this time. However, because of my already compromised immune system I need to stick around town until it's down by at the very least half of what it is now. I also need to "stay out of crowds", come in for my flu & pneumonia shots, push vitamins, etc, etc, etc. In the meantime, time for another round of tests. There is concern that the infection in my central nervous system is back or has never been completely gone away. We won't know since I've already had 4 spinal taps since July & no one is going to do another for quite a while. Fine....I'm heading down to my Dad's house for Thanksgiving - come hell or high water. husband is driving & we're going down as a family. The doctor's have until then to clear this up or I'm going anyhow. I'll wear those masks if I have to... It took me a lot to build up my courage for this trip for the wedding....I know that it's not a good idea to leave town while my sed rate is so high. Too far away if I need medical attention. I'm frustrated - I need answers! At the very least, I just need to heal & get well - with-o answers.