totoro
Mom? What's a difficult child?
even for a few minutes??? The past week and a half has been up and down to say the least!
mother in law in the hospital for 5 days... she is OK now. husband bestfriend's brother killed himself (he has kids and a wife), one of my old highschool friends died of a heart attack.
Then the kid's... difficult child 2's Occupational Therapist (OT) feels that her sensory issues are much worse than difficult child 1, and very opposite. One is sensory seeking while the other is sensory avoiding... they have similiar sensory issues as well, noise, vision. So they feed off of each other and elevate each other... basically make each worse. She is struggling with how to work with this issue. difficult child 2 will shut down while difficult child 1 will become anxious... it is all one big conflict!
difficult child 2 started hippotherapy, awesome! The first real great thing in awhile... she is going to do one month or so of Hippotherapy and then progress to Therapeutic Riding, with another difficult child!!! Yeah.
I met with the public school regarding difficult child 1 starting kindergarten, I went fully armed with the facts, just to talk about if difficult child 1 would be a good fit in the school etc. They had the principal, psychologist, kindegarten teacher and the Special Education teacher!!! They listened to everything I said, really were uninformed on Early Onset Bi-Polar (EOBP), and the situation in our area. They suggested a shadow/aid for difficult child 1 so she can transition seemlessly. The psychologist said I think we need to start with a 504 plan. I said if she starts having issues that need interventions I will be filling for an IEP and they said OK. They will not ask for any evaluation, because my are from the people they would send me to anyway... The nuero-psychiatric report says she needs accomodations etc, and that is who they use. I felt really good leaving, I know it isn't perfect and they don't have a lot of resources, but they are trying to help. They thanked me for being so informed about difficult child 1 and prepared! I still have to meet the PSR guy/girl, I have used them before and didn't like them too much but that was pre-diagnosis for difficult child 1.
Our therapist was blown away, she said the school never offers these types of things here, let alone shows up with all of those people for just a talk about entering the school!!! I had called and just gave a brief overview of difficult child 1.
Then psychiatrist apt on Friday, she talked to difficult child 1, told her she heard voices and they told her to hurt herself, and that she tried to hurt herself at times... :frown: She hits herself sometimes. She told her she was sad sometimes... husband said "I think it is time to try another Mood Stabilizer" She agreed with Lamictal!!! The meeting went pretty well, 45 minutes no rush. I then said I have asked for blood work and noone will do it, she said OK!!! Then husband said is there any easy way to get ahold of you when difficult child 1 is having issues? Or when we have a medication question, like an e-mail??? She said yes!!!
So we started Lamictal Saturday, I saw the Lamictal thread! 12.5mg to start, is that a good starting point I belive we are doing this for a week, and then up another 12.5...etc. To 50mg will be our next apt. She also gave us enough sample to get us through till next apt!!!
Then the other night difficult child 1 started talking to the voices in her head in front of husband, she usually only does this with me, they were telling her to die... :crying: She told the "Mean Fairy" she would die, then told me she was just telling him that so he would leave her alone... and that she really wasn't going to die, don't worry Mommy. I think this really hit home for husband, he was a bit skeptical up till this point... didn't want to believe. My poor baby. psychiatrist thinks we may have to change the Abilify, if it isn't touching the Auditory Hallucinations and she is still slightly raging... after we get the Lamictal up to therapuetic range.
So it has been 2 days and we have seen nothing so far, which I read is to be expected. She has been cycling pretty bad, her mixed states are so extreme and she is so close to full blown mania again! The other day she was trying to get out of the car, kicking my seat throwing stuff at my head, this happened 2 days in a row, luckily we can lock her door from the inside.
Anyway I am sorry for the length, I have been so busy, with all of the apts, and trying to get people together, phone calls etc. This week is worse husband is gone and I have to take her for her first blood draw, with difficult child 2 also. I told them I wanted Emla.
I just feel overwhelmed, I am also looking for a babysitter who can work during the day and a pre-school for difficult child 2...
Thanks if you have made it this far...
mother in law in the hospital for 5 days... she is OK now. husband bestfriend's brother killed himself (he has kids and a wife), one of my old highschool friends died of a heart attack.
Then the kid's... difficult child 2's Occupational Therapist (OT) feels that her sensory issues are much worse than difficult child 1, and very opposite. One is sensory seeking while the other is sensory avoiding... they have similiar sensory issues as well, noise, vision. So they feed off of each other and elevate each other... basically make each worse. She is struggling with how to work with this issue. difficult child 2 will shut down while difficult child 1 will become anxious... it is all one big conflict!
difficult child 2 started hippotherapy, awesome! The first real great thing in awhile... she is going to do one month or so of Hippotherapy and then progress to Therapeutic Riding, with another difficult child!!! Yeah.
I met with the public school regarding difficult child 1 starting kindergarten, I went fully armed with the facts, just to talk about if difficult child 1 would be a good fit in the school etc. They had the principal, psychologist, kindegarten teacher and the Special Education teacher!!! They listened to everything I said, really were uninformed on Early Onset Bi-Polar (EOBP), and the situation in our area. They suggested a shadow/aid for difficult child 1 so she can transition seemlessly. The psychologist said I think we need to start with a 504 plan. I said if she starts having issues that need interventions I will be filling for an IEP and they said OK. They will not ask for any evaluation, because my are from the people they would send me to anyway... The nuero-psychiatric report says she needs accomodations etc, and that is who they use. I felt really good leaving, I know it isn't perfect and they don't have a lot of resources, but they are trying to help. They thanked me for being so informed about difficult child 1 and prepared! I still have to meet the PSR guy/girl, I have used them before and didn't like them too much but that was pre-diagnosis for difficult child 1.
Our therapist was blown away, she said the school never offers these types of things here, let alone shows up with all of those people for just a talk about entering the school!!! I had called and just gave a brief overview of difficult child 1.
Then psychiatrist apt on Friday, she talked to difficult child 1, told her she heard voices and they told her to hurt herself, and that she tried to hurt herself at times... :frown: She hits herself sometimes. She told her she was sad sometimes... husband said "I think it is time to try another Mood Stabilizer" She agreed with Lamictal!!! The meeting went pretty well, 45 minutes no rush. I then said I have asked for blood work and noone will do it, she said OK!!! Then husband said is there any easy way to get ahold of you when difficult child 1 is having issues? Or when we have a medication question, like an e-mail??? She said yes!!!
So we started Lamictal Saturday, I saw the Lamictal thread! 12.5mg to start, is that a good starting point I belive we are doing this for a week, and then up another 12.5...etc. To 50mg will be our next apt. She also gave us enough sample to get us through till next apt!!!
Then the other night difficult child 1 started talking to the voices in her head in front of husband, she usually only does this with me, they were telling her to die... :crying: She told the "Mean Fairy" she would die, then told me she was just telling him that so he would leave her alone... and that she really wasn't going to die, don't worry Mommy. I think this really hit home for husband, he was a bit skeptical up till this point... didn't want to believe. My poor baby. psychiatrist thinks we may have to change the Abilify, if it isn't touching the Auditory Hallucinations and she is still slightly raging... after we get the Lamictal up to therapuetic range.
So it has been 2 days and we have seen nothing so far, which I read is to be expected. She has been cycling pretty bad, her mixed states are so extreme and she is so close to full blown mania again! The other day she was trying to get out of the car, kicking my seat throwing stuff at my head, this happened 2 days in a row, luckily we can lock her door from the inside.
Anyway I am sorry for the length, I have been so busy, with all of the apts, and trying to get people together, phone calls etc. This week is worse husband is gone and I have to take her for her first blood draw, with difficult child 2 also. I told them I wanted Emla.
I just feel overwhelmed, I am also looking for a babysitter who can work during the day and a pre-school for difficult child 2...
Thanks if you have made it this far...