cnels, you ARE going to get labelled as an overprotective mother. But you need to be, so ignore the critics. It's like, yesterday I was told that local kids are publicly calling difficult child 3 a freak, and hassling his friends for allowing him to visit them. There's nothing I can do to stop kids calling my son a freak. All I can do is thank his friends for sticking up for him and equip difficult child 3 with the skills to shrug it off and tell the abusive kids to get a life.
I HATE to think what some people in our neighbourhood and at the local school are calling me. But if I let it get to me, it would severely cramp my style. better to be hung for a sheep as a lamb, I reckon. I carry on being the best mum I can be, and any critics can go and do something personally anatomical, for all I care.
Once I embraced this attitude I found it very freeing. True, I never get invited to the more upwardly mobile social parties, but I DO get invited to meet with some very different but fascinating people. All the energy I would have expended in trying to conform, I now expend in activism and progress. I am respected by people I value. I know I'm disliked by others, and from those people especially, I view their dislike as an indication that there's something else I'm doing right!
Kids like ours NEED us to be overprotective. Find yourself a network of parents of similar children, with whom you can meet socially. And if any of THEM say you're being a tad overprotective, THEN you can consider taking a step back occasionally. Because they've been there done that, they ARE speaking from experience.
It's useful to keep in touch with the groundswell of gossip (it keeps you forewarned of misguided idiots about to do the wrong thing for your child), as long as you don't let it worry you in any way. Example: if you KNOW (because you've heard via the grapevine) that a certain teacher or the principal considers you overprotective, it gives you the chance to prepare your reply for the time they actually raise the topic with you.
And totally digressing, but it reminded me of something i want you to watch out for - right now, you're having troubles because the school doesn't seem to be taking the IEP etc as seriously as they should, and on top of this they're not taking responsibility for the problems which have resulted. Now, in order for them to continue to hold to this attitude and point of view, they HAVE to devalue the IEP and the Behaviour Plan. So at the same time as they're trying to dump the responsibility onto your son, they are also likely to try this approach: "He's really doing so well, he's so high-functioning, that he doesn't really need this level of intervention that we have in place. There are other children who need this funding more, we don't have infinite resources and we shouldn't be too selfish and deprive a more needy kid" [WARNING _ spurious argument - inappropriate and inapplicable] The next one: "he's doing so well, he doesn't NEED this sort of help. And for his own sake, he needs to learn to cope without it. We should wean him off to a lower level of support."
They HAVE to try this, or accept that they should be more fussy about applying the IEP etc.
The version of this t hat WE got (and it still blows me away with it's stupidity): "difficult child 3 is doing so well now. I look out in the playground and he looks just like all the other kids...[it's called 'school uniform' - it means they blend in] ...he seems so normal and he's now talking so well, his language skills are in the normal range. HE IS NO LONGER AUTISTIC. Isn't this wonderful?"
This was from a school counsellor, supposedly trained in psychology and Special Education.
I quickly informed her that autism is for life. It's not able to be magically cured. difficult child 3's own description of himself is the most apt - "I'm getting better at pretending to be normal."
But the danger in accepting the tiniest scrap of what she had said - t hey would have justified his apparent lack of symptoms (to a casual observer from 50 feet away) as reason for abandoning the IEP and any other form of support of consideration. He was only doing as well as he was through his own efforts, coupled with existing support. And he WASN'T doing as well as she seemed to think - it was a mirage, pure and simple.
I always made a point of getting on well with the school staff, even the office lady who is unbelievably rude and insolent to everyone else (including the principal). It's a point of pride for me that she speaks civilly to me, I considered it practice for handling a difficult child. (I had thought - if I can win over a troublesome, independent adult, then I can handle anyone). But I never accepted any compromise when it came to their treatment of my sons.
cnels, you are now a certified Warrior Mum. Embrace it. You can do it. And as you do, you are also showing your child that you love him and will fight for him. You are also showing him how to APPROPRIATELY deal with the necessary red tape, and to fight the system the RIGHT way. I've seen easy child in action, now she's an independent adult working in the health care system. I'm proud of her when I see how she handles other people, red tape and protocol. She learnt it at my feet. As will your kids.
Marg