hi
the continuing soga. wow i should write a book that no one would ever buy
met with-a whole team, didnt' expect that. guess my peds being neighbors with-this guy was highly beneficial. there was a peds who specializes in eating disorders and who was fully aware it was a food phobia, a pyscholigst, a wholistic practioner, another woman who did a bunch of cognitive stuff on her.
long long time 4 hour meeting with-difficult child in the room. history, food history and eating (which last hospital never did), alot of info given. all the medical tests done as well as weight which is now down to 96.
at the end of the day choices were either feeding tube or them letting me handle refeeding from home. peds told them i had a little experience with-other stuff yet not refeeding. ok so difficult child was given a choice feeding tube and full hospitalization or home and refeeding with-special shakes to start that holistic person would give me recipes for.
as soon as hospital was mentioned difficult child cried, begged, pleaded it was very sad. she was also very overwhelmed with all the diagnosis's talk of her past illness. it was alot in that small hot room for even me for 4 hours straight, than half hour with-her out and me alone with them.
p.s. i'm home with-her. got ingredients for all the shakes, went to store on way home to get bunch of junk. therapy wont' be added till nutrition is in. they said her brain wont' be working well anyway we gotta focus on refeeding that's first and foremost! yay!! i thought.
also i said to them i have a gut feeling that she has sensory integration disorder, always did, yet just made accomodations for her and was so focused on all the other junk with her. well after meeting with-her, history with social, emotional, food preferences when did eat, way she presents, acts etc. they said she is. after she's back to normal gotta go to a sensory guy next.
heading back to hospital on monday with-her for check up on how it's going, weigh in, and discuss progress and check rest of bloods and tests they ran. deal is first shake she refuses i put her in truck and she gets admitted.
got home made the thing she picked off the list. did color therapy and some visualization with her and meditation breathing. she cried an awful lot. yet she got it down in under two hours
she is petrified of food i've come to see and learn. it's as if she cant' be around it. so this is my new life now. we have exact times for shakes. if i'm out i'll have to prepare them before i leave and put them in a thermos. she cant' do any physical activity like parks, horseback riding, anything except small walks until she is stable again. and no sleepovers or visitation with dad!! ya ya ya ya happy dance!!
gotta call school tmrw and work on getting tutors in during day. i'm nervous yet i'm praying it'll work. it was alot of work that first shake. now we get a reprieve till 7 when she has to work on the next one.
what do you guys think???
i'm kinda really tired
the continuing soga. wow i should write a book that no one would ever buy
met with-a whole team, didnt' expect that. guess my peds being neighbors with-this guy was highly beneficial. there was a peds who specializes in eating disorders and who was fully aware it was a food phobia, a pyscholigst, a wholistic practioner, another woman who did a bunch of cognitive stuff on her.
long long time 4 hour meeting with-difficult child in the room. history, food history and eating (which last hospital never did), alot of info given. all the medical tests done as well as weight which is now down to 96.
at the end of the day choices were either feeding tube or them letting me handle refeeding from home. peds told them i had a little experience with-other stuff yet not refeeding. ok so difficult child was given a choice feeding tube and full hospitalization or home and refeeding with-special shakes to start that holistic person would give me recipes for.
as soon as hospital was mentioned difficult child cried, begged, pleaded it was very sad. she was also very overwhelmed with all the diagnosis's talk of her past illness. it was alot in that small hot room for even me for 4 hours straight, than half hour with-her out and me alone with them.
p.s. i'm home with-her. got ingredients for all the shakes, went to store on way home to get bunch of junk. therapy wont' be added till nutrition is in. they said her brain wont' be working well anyway we gotta focus on refeeding that's first and foremost! yay!! i thought.
also i said to them i have a gut feeling that she has sensory integration disorder, always did, yet just made accomodations for her and was so focused on all the other junk with her. well after meeting with-her, history with social, emotional, food preferences when did eat, way she presents, acts etc. they said she is. after she's back to normal gotta go to a sensory guy next.
heading back to hospital on monday with-her for check up on how it's going, weigh in, and discuss progress and check rest of bloods and tests they ran. deal is first shake she refuses i put her in truck and she gets admitted.
got home made the thing she picked off the list. did color therapy and some visualization with her and meditation breathing. she cried an awful lot. yet she got it down in under two hours
she is petrified of food i've come to see and learn. it's as if she cant' be around it. so this is my new life now. we have exact times for shakes. if i'm out i'll have to prepare them before i leave and put them in a thermos. she cant' do any physical activity like parks, horseback riding, anything except small walks until she is stable again. and no sleepovers or visitation with dad!! ya ya ya ya happy dance!!
gotta call school tmrw and work on getting tutors in during day. i'm nervous yet i'm praying it'll work. it was alot of work that first shake. now we get a reprieve till 7 when she has to work on the next one.
what do you guys think???
i'm kinda really tired