It doesn't fit all my symptoms and it seems that the doctor, like so many others I've had, is latching on to this and putting all his eggs in the basket. I can relate to some things, but not anywhere near all of it. And I have many more symptoms that it doesn't seem to address.
I left the office in tears. It's good to know there is a deficiency, but had I not pushed as to why there was such a deficiency, he would have been happy just writing a script for Vitamin D and sending me on my way. Other than checking for Celiac Disease, he's not doing anything else. I think I'm going to have to push for maybe an endocrinologist? I don't know. I'm just frustrated beyond words.
It's another one of those things where I feel like we've just found another symptom; not the answer, yet they are too quick to say this is it. Like before my heart attack and the tests showed prior mono so they said well it's chronic fatigue and then washed their hands of it.
It doesn't help that everyone was putting all of their hope into the rheumy. I keep thinking how the neurologist said that if it's not rheumatic then they are going to be scratching their heads and I want to scream. The rheumy did offer to do an MRI of my spine, but he was going to do it without contrast. If they're going to do an MRI anyway, I want contrast to check for MS. Let's just check it all at once, Know what I mean??