Matty's Mummy
Member
So we went to Minds and Hearts they are leading experts on autism spectrum disorders, we seen a DPsych who was wonderful.
We went to try and find strategies to help our son, sure we knew he had quirks and our Pead had said possibility or Pervasive Developmental Disorder (PDD)-not otherwise specified, but we didn't' know she had changed her diagnoses to Aspergers syndrome as was in her letter to the clinic.
So we came away with a very clear diagnoses of Aspergers syndrome, Anxiety disorder and Obsessive Compulsive Disorder (OCD), they also have giving us lists of how to help our son. We are having a meeting at school this week to try and work with them on our sons IEP (Individual Education plan) mostly our son has done well at school though he stopped playing at lunch brake with other children half way through last year. His teacher was wonderful last year and tried to help, the teacher also seemed to talk the correct language to our son that never seemed to confuse him, fast forward to this year and it's all gone to.... out the window.
His teacher this year constantly uses idioms, like when I asked how our son was going after being away for a few weeks 'oh we just got right back into the SWING, of things didn't' we mate?' our son replied with 'what do you mean swing' and later was sure to tell me he didn't' go on the swing. There are of cause much bigger issues with school, he is not talk much at all, wont read in group as he says 'I'm not smart' and he has anxiety so bad he shuts down and cant work. One such day his teacher had asked if the class could add another 2lines to their story, that was it he shut down, he had about 4lines in his mind that, would finish what he wanted to say, then he couldn't' cut back. Then his teacher stood over him trying to find out what was going on, (Pushing him more) and he was in tears. Poor kid.
At home he continues to struggle with simple things like he has to have confirmation over everything, like at dinner time, he sits in the same chair every night and yet every night he has to ask where to sit and must not only be told but we have to point or say it in another way before he will sit. Other times he wont pick up his dinner plate to bring to the table until we say which is his even though we have said 'M, your dinner is on the bench it's the only one there' he will still have to ask while he is standing there right at it before he will pick it up, if we dont answer him, he will stay there. We never dont answer him as that is cruel, but we have been guilty of not answering him when he is in his room to get dressed, only because we haven't heard him, with his clothes laid out, he will stay in his PJ's until we go to him and point at the clothes...
I thought I had an idea about Apergers but wow all kids with this are so different to each other. When I think of a child with AS I think of a child that talks constantly about things no-one else is that interested in, like the components of metal... our son is more non verbal even though he talks...
I feel a little overwhelmed but I wasn't' going to cry not one drop when we were told the results as I didn't' cry when we were told of our other son having Down syndrome. We have a lot to prepare for as we start to work on things at home, then later our son will have CBT with a phycologist
Thanks again for this wonderful group.
We went to try and find strategies to help our son, sure we knew he had quirks and our Pead had said possibility or Pervasive Developmental Disorder (PDD)-not otherwise specified, but we didn't' know she had changed her diagnoses to Aspergers syndrome as was in her letter to the clinic.
So we came away with a very clear diagnoses of Aspergers syndrome, Anxiety disorder and Obsessive Compulsive Disorder (OCD), they also have giving us lists of how to help our son. We are having a meeting at school this week to try and work with them on our sons IEP (Individual Education plan) mostly our son has done well at school though he stopped playing at lunch brake with other children half way through last year. His teacher was wonderful last year and tried to help, the teacher also seemed to talk the correct language to our son that never seemed to confuse him, fast forward to this year and it's all gone to.... out the window.
His teacher this year constantly uses idioms, like when I asked how our son was going after being away for a few weeks 'oh we just got right back into the SWING, of things didn't' we mate?' our son replied with 'what do you mean swing' and later was sure to tell me he didn't' go on the swing. There are of cause much bigger issues with school, he is not talk much at all, wont read in group as he says 'I'm not smart' and he has anxiety so bad he shuts down and cant work. One such day his teacher had asked if the class could add another 2lines to their story, that was it he shut down, he had about 4lines in his mind that, would finish what he wanted to say, then he couldn't' cut back. Then his teacher stood over him trying to find out what was going on, (Pushing him more) and he was in tears. Poor kid.
At home he continues to struggle with simple things like he has to have confirmation over everything, like at dinner time, he sits in the same chair every night and yet every night he has to ask where to sit and must not only be told but we have to point or say it in another way before he will sit. Other times he wont pick up his dinner plate to bring to the table until we say which is his even though we have said 'M, your dinner is on the bench it's the only one there' he will still have to ask while he is standing there right at it before he will pick it up, if we dont answer him, he will stay there. We never dont answer him as that is cruel, but we have been guilty of not answering him when he is in his room to get dressed, only because we haven't heard him, with his clothes laid out, he will stay in his PJ's until we go to him and point at the clothes...
I thought I had an idea about Apergers but wow all kids with this are so different to each other. When I think of a child with AS I think of a child that talks constantly about things no-one else is that interested in, like the components of metal... our son is more non verbal even though he talks...
I feel a little overwhelmed but I wasn't' going to cry not one drop when we were told the results as I didn't' cry when we were told of our other son having Down syndrome. We have a lot to prepare for as we start to work on things at home, then later our son will have CBT with a phycologist
Thanks again for this wonderful group.