All of a sudden husband is

dreamer

New Member
Many hugs and my sympathies to you. It is hard, very hard. I am guessing you must feel abandoned and overwhelmed and anxious?
Truth is it IS hard to be the spouse of someone with a serious chronic illness. ANd your husband ? recovering drinker? Do I remember, he has diagnosis of bipolar, too?
So often amongst us here on this site we encourage each other and support each other to take care of yourself FIRST .....do what you must do for yourself. We have kids that push us beyond our own limits and many of us here have had to take drastic actions etc to preserve our own quality of life. Sometimes those things we must do for our own self are not ones we could ever have predicted we might one day find ourself doing....chronic illness changes a LOT of things in our lives and in our relationships and in our needs and priorities in our day to day life. I have been in both shoes, the care giver for a seriously ill spouse and also a seriously ill spouse, both long term. Being the one who is ill is horribly difficult, but, it is also true that being the caregiver for a chronically ill spouse is incredibly hard. And yes, add in special needs kids, of which I also had 2 but now have 3/4, suddenly....for awhile you kinda run on some denial and some autopilot, but eventually you wear out and it starts to sink in just how hard this is, and how ongoing it is......
People seldom CHOOSE timing to become overwhelmed or exhausted. I am sure husband did not choose to become this way any more than you "choose" to become ill.it just happened. Sounds like it just finally HIT him? Or finally caught up with him Possible he may be right now fighting off some physical illness, a cold, allergies, someething, something he probably is not even aware of himsef, and it could be makeing him feel even less able to cope----(and possible his body will successfully fight whatever it might be so he never does manifest with outward symptoms, such is our immune systems)
Yes, it stinks, - just like it stinks when our difficult children wear us down to our last frazzled resource and we must call and arrange to place them or psychiatric hospital them or whatever. I doubt your husband is doing this simply to be malicious or selfish or lazy.....I have a feeling he has been on overload for awhile, just as you probably have been.....but he is simply a mere human with limits of his own, too. He can only do what he can do. and good timing or not, he may very well have just hit his own personal invisible brick wall. Try to be patient, there is every possibility you can handle the weekend better than you think. There is also every possibility kt MIGHT handle the weekend just fine. You might find it turns out to be a pleasant surprise and you and kt have a girls weekend......relax the "shoulds" eat cereal, let dishes sit, whatever.....don't sweat the small stuff, pick any batlles carefully......sleep late with kt, watch a movie, polish nails, do make up......if a crisis DOES erupt, call 9-1-1.
 

house of cards

New Member
I am sorry you are having to deal with this on top of everything else. I think you know alot of people truly care about you and your family here, hope you can feel the strenght and love. I'm hopeful kt will come through for you this week-end and that husband will get it together.
 

mstang67chic

Going Green
Sending hugs. I don't really have advice myself but I think you've gotten some good ideas from others. Wish I was close too....I'd come help.
 

DDD

Well-Known Member
Sending caring thoughts to you and husband. I doubt he really chose this moment to bolt....chances are he just plain had to do something to ease the stress. Sending you a bug hug!DDD
 

Star*

call 911........call 911
:(Linda,

I have yet to discover anything even remotely fair about living with someone who has a disablitily. What Marcie said rings true for me. Sometimes I NEED to be the sick person that gets a little attention and the sick person I give my attention to doesn't want to be sick - he just is and that's the way of it.

A lot of times I have said "I can NOT/WILL not" take another day of THIS (my) life, and left. I love my family - But I have to feel human sometimes too and I would nearly kill for a normal day without hearing about "the pain". I want a day where we're up till midnight and doing old things we did when I met him and found him desirable.

I still love him - but if someone offered me a week away from it? I would run screaming to the hills - for us it's been nearly 9 years of "adjusting" and some days I do not WANT to adjust I just want him to be the man I fell in love with that DOES things with me and doesn't sleep all dang day and leave it all seemingly to me to do.

I want a 2 income home again - and I want things and ---my list can go on and I could get those things very easily - I could leave him, find someone else and have them (snap) but what I REALLY REALLY WANT - is for HIM - the love of my life to be the whole person I knew and for us to have that grow old together but well thing.

THAT? I will never have - so I have a choice - i can either leave him and go live my life without.....or I can blow my top now an then about how ABSOLUTELY FREAKING UNFAIR it is that I had to wait 33 years to find him and 2 years later he's disabled, sleeping or sitting on a couch and has NO interests in ANYTHING. On the other hand I know HE would kill for one day like it used to be as well - and THAT much information has been able to float us through rough times like you are having now.

I just hope a bear doesn't eat his *** in the cabin. Because once he has a weekend alone? I bet he'll be back and then you can tell him - you wish it were different too.

Hugs
Star
 

KTMom91

Well-Known Member
Linda,

I don't have anything to add to what the others have already said, but wanted you to know I'm thinking of you and kt. Wish I was closer as well. Sending many hugs.
 
B

butterflydreams

Guest
I am so sorry you are having to deal with this on top of what you already deal with everyday. I think his timing could have been better where you don't have the PCA this weekend. Hopefully, he will realize that although it is very stressful dealing with the kids and with your illness there has to be alot of joy too. I too hope he hasn't started drinking again, that is absolutely not going to help him or anyone else.

Sending big hugs your way,

Christy
 

dreamer

New Member
I am wondering if maybe he must bolt so he does not backslide to drink?

I agree, it is unfair....to you, to him....to the family. I know there are times I want to grab my husband and rattle the heck outta him and SCREAM and say HEY, I miss someone holding my hand sometimes. I miss someone helping me to make a living and support us, I miss someone to sit beside mewhen a movie is on, I miss haveing someone to share my fears re our kids with....I absolutely HATE being THE one who alone sat 5 hours away at sons surgical bedside...at sam time as I was also trying to manage our girls long distance and also keep up with how husband was doing in HIS ICU bed. And I hated it even more becuz I was doing so on MY mobility scooter....
Yes, my sons eye injury was unfair to him, to me, to husband, to my daughters, it was insanely expensive and kept me out of our home for the better of 18 months. I hate difficult children bipolar becuz it kept me on edge and at odds at school and on 24-7 "on call" becuz she had nonstop crisis. Her illness has been terribly unfair to her and to all of us. PCs current pregnancy complications are unfair to her and to all of us. MY illness has been unfair to me and to all of us.
My illness required me to rethink my ideas of priorities in our home, in our day to day life, since for a time I could not do anything at all-----I had to learn to accept how my family did or did not do things, I was at their mercy. I had to face finally that while "I" run hypomanic always, my husband and kids do not. I had to experience my husband and kids limits and their level of functioning just as they had to learn to accept mine.
I htink it was MY disability and inability that finally hit it home for me just how it is not someones fault when they are struck down with any illness, be it fibromyalgia, biplar, anxiety, depression etc. And I had to learn to be fair. difficult child never chose to have bipolar. she dutifully took her medications, met with therapists, docs etc day after day after day.it is not her personal fault if things did not always work the way the professionals tried to tell us they might. My husband did not choose to be exposed to agent orange or get brain lesions or emphysema, or become schizoaffective. He did not go out and buy his combat PTSD at our local walmart. and I know I did not buy my lupus and RA and crippledness at the grocery store when I was cashing in all my coupons. The quality of life for the ill person stinks.and the quality of life for those around the ill person also changes dramatically. The beauty of haveing a significant other or family is that it is the sanctuary to go to when you are down. It is hopefully who you can go to when things get hard....BUT family members still are only human, all of us are only human, andbeing human we ALL have limits to what we can DO and what we can TAKE and what we can cope with. we all bring our collective gifts to our "family" and hopefully if we pool ALL our resources, with luck we can hopefully somehow meet everyones needs. But sometimes our expectations might need adjusting.
I often mourn for things that just are not. I want the man I married back. I want my pphysical abilities back. I want my dream children.
Likely your husband is grieving for what is no more. as in welcome toholland.he maybe has not really had a chance to catch his breathe. Asthmatics do not pick an choose when they must struggle tobreathe, and I bet your husband did not pick and choose and suddenly be overwhelmed right now on purpose. The ramifications of your illness DOES affect him.....please permit him to take care of hiimself so he can come back and take care of all of you again. Many things in life could be timed "better" when people are born, when people die, when people get preg.....but.Ihave a feeling, if you do a little planning and creative thinking, you and kt will fare just fine. AND there might even be a benefit....by being alone, the 2 of you, you might find out you CAN do better than you think.....Take a deep breathe..... You CAN do this.....you are not in an isolated remote cabin with no phones no elec, no delvery of food, (LOL) you will not be on a deserted island. you will be in your own home, with all the normal amenities....with a phone and kt and your bed etc. and you have everyone here, too. and if thevery very worst happens? (whatever it might be) you CAN call 9-1-1. If husband were home.....what exactly would be SO different? This weekend he might be able to regroup- and you might find it works out better than you expect. don't bother to make beds, who cares if you have "proper" meals, if it is anxiety causeing to bathe, well, then wait till someone else, another adult is there....
 

TerryJ2

Well-Known Member
Aaargh! I am so sorry.
I am hoping your H was just venting and didn't really mean it. Maybe the weekend will help. You can only wait and see.
In the meantime, I agree, you need to call for some help for you and kt, especially since you sleep so deeply.
Your H saying he can't deal with-this and threatening to leave makes me want to sock him. Again, I hope he was just venting.
 

nvts

Active Member
Linda! I just got an idea and thought I should swing it by you.

Around here, the kids study to get their Confirmation (in the Catholic and Protestant faiths). Most parishes and churches require them to do "x" number of hours of community service (helping others, etc.). Are there any local churches that you can talk to their religious ed. instructor and see if they have a list that you can be added to?

It's not like you're expecting them to re-shingle the roof - it would be simple things like helping with your house/yard work, etc.

This might give husband a break and you'd be helping these kids out with a reference showing how many hours they helped.

I know you're proud, but this is about giving husband a break!

Again, just a thought!

Beth
 

gcvmom

Here we go again!
I'm so sorry he's being such a jerk right now. been there done that for a long while here now until my husband got his head sawed into and finally got on some medications that address his issues (whether he realizes it or not). Seems a lot of men don't always know where to go for a pity party and they end up having a hissy fit and start talking out of their :censored2: instead of turning to friends or other loved ones for support to talk things over -- their emotions run amok and they forget how to use the thing between their ears. I don't know the history of yours, but it sounds like he's overwhelmed and only knows to bolt instead of facing his issues like rational adult.

Hang in there... maybe his head will clear and he'll realize the ridiculousness of what he's just said and done.
 

totoro

Mom? What's a difficult child?
Just thinking of you. I watch my husband as his Arthritis and Gout get worse... he has to see a specialist. He needs a specialist. I worry about how much he can take. How much of a trooper he is. How strong, I am sure it will wear on me as he does get worse. With the kids and my own lame issues. If he ends up in a wheelchair. But I signed up for him... I wont walk away from the girls because of their health... nor him. We are all still the same somewhere inside. Even when the days are long and black... my husband believes in me even when I am having many Bipolar days...

I hope your husband is taking some time to re-evaluate things and come back fully charged, for what he knows is important to him.
We all know these things are horrible, draining, make you wanna drink and scream...
But there are so many beautiful moments also... in our marriages, our children... our lives. So much beauty. Still
 

ctmom05

Member
Linda,

There's little wisdom I can add to what's already been shared here by everyone else who has posted. I feel sad for you that one more very big things has been added to your pile.

I have learned over time that family members, often a significant other, has a unique need for support in a high needs situation. There are times when you seem to be like 2 ships passing in the night, nearby - but not connecting. You each "need" and neither one is able to squeeze out one more drop of stick-to-it-tiveness.

Getting away from it all is ok on a temporary basis, but works much better if you are recommitting yourself to dealing with the tough issues when you hit home turf again.

You are such a wonderful, caring, sensitive person; I can guess that this situation must be making you crazy wondering where it's gonna go.
 

Abbey

Spork Queen
Seems a lot of men don't always know where to go for a pity party and they end up having a hissy fit and start talking out of their :censored2: instead of turning to friends or other loved ones for support to talk things over -- their emotions run amok and they forget how to use the thing between their ears. I don't know the history of yours, but it sounds like he's overwhelmed and only knows to bolt instead of facing his issues like rational adult.

One of the most brilliant replies.

I could start a new class for guys: Pity Party 101. We ladies could show them how it's done properly.

Abbey
 

Abbey

Spork Queen
Star...DO NOT get me started on Uranus jokes. I am married to a physicist and a math teacher for years. I've heard them all. Actually, it might help Linda feel better. ;)

Abbey
 

Nancy

Well-Known Member
Linda,

I hope things are better today. I hope this is just a horrible phase for husband and he is overwhelmed and doens't know how else to show it. I hope he finds a way to put you back in the equation and realize this is a very difficult situation for both of you and you need each other to lean on.

Heaven knows families are destroyed but what many of us face every day. Years go by with all the daily struggles and crisis and then one day something snaps and the family which has been hanging on a thread, begins to unravel. None of this is fair to any of us. I was just thinking today that in hindsight I can see those times so clearly, when one of us can't go on any longer. Somehow, someway a new day comes and we find the courage to fight another day. That is what I hope happens for you.

This has been such a long and difficult road for you and it seems that right now husband can't see the end of the road. We need to see the end of that road to keep our hopes us.

Hugs,
Nancy
 

KateM

Member
Linda, I am so sorry for this hurt! You two have persevered through many struggles and with a weekend to recharge, perhaps husband will bring home a better perspective.

I remember a year or 2 ago, you both went on a retreat week or weekend and enjoyed it. Is this something that might help you now?

Also, does husband attend AA mtgs? Does he have a sponsor? This has helped so many!

Many prayers and good thoughts to you and your family!
 

Abbey

Spork Queen
I can't resist. Plus, my car won't start so I can't go to work.

#1: How far is Uranus from the Earth?
Well, if you are standing up, (depending on how tall you are), the distance between the two, can range from 2 to 3 feet!
And, if you get knocked on your bootie, that would mean that Earth and Uranus have collided!!!

Abbey
 
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