PassedExhausted
New Member
Hello all!
I haven't posted in a while and so I needed to recreate my account. I have a question for some of the more experienced parents that have gone through the Autism Spectrum Disorders (ASD) battles. In January of 2011, my son (14 at the time) was finally diagnosed with Autism Spectrum Disorders (ASD) (Aspergers actually). I thought, "Finally!" It was like validation to what I'd thought his whole life. It was by a respected psychologist at the long-term children's in patient unit (for the 2nd time). At that point, half of his team/school thought this was accurate...the other half really didn't. At that time, I had strong supporters on his team that absolutely felt this was an accurate diagnosis. Since then, my son has been to an Residential Treatment Facility (RTF) and now back to school. The Residential Treatment Facility (RTF) staff definitely felt that this diagnosis was "mistaken based on crises behaviors presented at the time." And his school...also doesn't see him as Autism Spectrum Disorders (ASD). The difference is, I currently have no other supporters who actually are in agreement the diagnosis (which is stated in an evaluation/assessment report). So, whereas, in the past I've felt validated and supported, I now feel like I'm out here by myself with people who can't see passed how far my son has come. My question is: Is this standard on the part of health professionals? I mean I thought I would get a diagnosis and everything would fall into place...instead there's more confusion and sometimes downright animosity. No one seems to agree on anything.
Thanks for any direction you can give me.
MK
I haven't posted in a while and so I needed to recreate my account. I have a question for some of the more experienced parents that have gone through the Autism Spectrum Disorders (ASD) battles. In January of 2011, my son (14 at the time) was finally diagnosed with Autism Spectrum Disorders (ASD) (Aspergers actually). I thought, "Finally!" It was like validation to what I'd thought his whole life. It was by a respected psychologist at the long-term children's in patient unit (for the 2nd time). At that point, half of his team/school thought this was accurate...the other half really didn't. At that time, I had strong supporters on his team that absolutely felt this was an accurate diagnosis. Since then, my son has been to an Residential Treatment Facility (RTF) and now back to school. The Residential Treatment Facility (RTF) staff definitely felt that this diagnosis was "mistaken based on crises behaviors presented at the time." And his school...also doesn't see him as Autism Spectrum Disorders (ASD). The difference is, I currently have no other supporters who actually are in agreement the diagnosis (which is stated in an evaluation/assessment report). So, whereas, in the past I've felt validated and supported, I now feel like I'm out here by myself with people who can't see passed how far my son has come. My question is: Is this standard on the part of health professionals? I mean I thought I would get a diagnosis and everything would fall into place...instead there's more confusion and sometimes downright animosity. No one seems to agree on anything.
Thanks for any direction you can give me.
MK