bzymomto4
New Member
It's truly going to be the death of me. I have been working on my 16 yr old's problem for at least 8 years; with wishy washy answers as to the problem or causes over 3 evaluations he has consistantly had exceptionally slow processing, problems in executive funtion - why I ask - no one knows the answers. faulty wiring they say- but with no definition. In the mean time school has become an adversary and at the end of his high school career I could just screem. I don't think I have the energy to learn all I need to about aspergers. He is set up for a neuropsychologist evaluation in Feb. I am more anxious about this than I am about my sky high blood pressure and the tumor in my stomach. After visiting this board I looked at aspergers, something I never felt I had reason to before. I was so shocked that his babyhood, toddlerhood,etc could be so well described. Insted of having one or two characteristics, he was only missing one or 2 charachterisitics (he has very early speech - 9 months old and on time or early gross moter milestones- sat independantly at 4 months) by kindergarten he had obvious comunication dificulties which have evolved in expression over time (dispite having a vocabulary IQ in the 93%) I had a baby who slept in until 9:30 and I thought I was blessed. I have another one of those in my 5 yr old. As a young teen his sleep disorder became so severe he would sleep for 18 hours a day and be groggy for hours after awakening. This condition has only been partially corrected with surgery. At 16 he still can't catch a baseball or a football, and gets angry if you ask him to join in and play. He also has no confidence on his bike. He got a nice expensive bike when he was 7. He never rode it. Now he walks to school and I had offered to get him a nice bike to ride - he told me that was stupid, walking is much faster. His recent psychiatric test showed no psychpoathology,no evidence of bipolar disorder despite his current diagnosis, lack of internal resources, and an inability to relate to human emotion. In a picture of two people hugging he could not think of anything they could possibly doing or how they were feeling. He was given a diagnosis of adhd. I am so angry right now that the professions we have trusted haven't saw fit to recommend a more in depth evaluation with someone more qualified. I have worked so hard to always make everything better - feeling like it was a uphill fight. Right now I feel like it is quite possible the answers that have been before us all along - but everyone doubts it. Please pray that I will find a way for my kids to get the skills they need to find a satisfiying way of life.